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Thread: If plaquenil or immunosuppression makes your ANA negative or affects other blood work

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Quote Originally Posted by maryalice40 View Post
    Well this rhematologist told me that your ANA and autoantibodies are completely meaningless, but it is part of the Lupus criteria, so why should it be blown off as absolutely nothing. That rhematologist was nothing more than a stupid hag!!!

    You may be an average joe schmo, but your intelligence is much higher than alot of these doctors... Thanks for that post. I wish I could of had you at my appt and let you tell her a thing or two. LOL. I just kept my mouth shut, I could have said plenty, but my opinion, she wasn't worth the stress nor worth my time.
    Oh, if you only knew...

    I think most Dr's, rheumo's, and other specialists in the town where I live cringe when they see me coming, as I have a bit of a reputation for telling them exactly what I think, sometimes in a rather loud and direct way. On the flip side, I have a GP who just came right out and told me that he knew very little about Lupus, but by the next time I see him, he would remedy that. He actually took the time to sit down and study up, and I'll be damned, he had a very good grasp of the subject by my next appointment. I joke with him that we need to send him to school to become a rheumo, and then clone him.

    There are some good doc's out there, you just have to look hard to find them. This rheumo of yours sounds incompetent. To say that your ANA results are meaningless-that's grounds for being fired in my book.

    Rob

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    I have been with my family doctor for 11 years, and I love him to death. I just couldn't make it through these problems without him. He has no idea how much I apprieciate it. My neuro is awesome too. He wouldn't even second question it when I tell him I am sick. I am so glad I went back to him. And I have the best gastro you could ask for. I wish I could say I had the best rhematologist around too but that's just not the case. More like the worst. My neuro was right when he said she needed to find a new profession. He said this after my first visit with her, he has no idea what she has done since. I could have hugged him, it felt so good having a doctor that I know without question believed me about being sick. This is just so hard to go through and having a doctor treat you like it's nothing, when you have been through so much torment, it's not right. You have me going here, I think I will file a complaint with the medical board on this doctor and let them deal with her. No doctor should have the right to treat you that way.

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    tgal (05-08-2011)

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Quote Originally Posted by maryalice40 View Post
    I have been with my family doctor for 11 years, and I love him to death. I just couldn't make it through these problems without him. He has no idea how much I apprieciate it. My neuro is awesome too. He wouldn't even second question it when I tell him I am sick. I am so glad I went back to him. And I have the best gastro you could ask for. I wish I could say I had the best rhematologist around too but that's just not the case. More like the worst. My neuro was right when he said she needed to find a new profession. He said this after my first visit with her, he has no idea what she has done since. I could have hugged him, it felt so good having a doctor that I know without question believed me about being sick. This is just so hard to go through and having a doctor treat you like it's nothing, when you have been through so much torment, it's not right. You have me going here, I think I will file a complaint with the medical board on this doctor and let them deal with her. No doctor should have the right to treat you that way.
    Filing a complaint probably would not benefit you at this point, but it could benefit the next person who comes along. If you think it's warranted, then go for it. It's funny you mention your good MD and neuro. Mine are the same way. The MD is awesome, and the neuro is too. They talk to me as if I were an equal, they don't insult my intelligence yet they are prompt to admit when something is beyond their own area of expertise. They are not afraid to learn. Rheumo's on the other hand, well, I've been through 4 rheumo's in as many years. I'm starting to think that they are the delinquent problem children of the medical profession. Can't do anything else? Become a rheumo! Frankly, I've met undertakers with better bedside manners than most rheumo's posess.

    Rob

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    Well that's good. Glad you have 2 good one's to back you up. When you have a chronic illness, you really need that. Rhematologists, lol. My first one got smarty with me over being there, said my PCP should have dealt with the issue, well it was a pain issue of my muscles, why is it my PCP should deal with that? Getting a diagnosis from him was no problem but I did not like his bedside manner one bit. I can't remember why I went to the 2nd one but I liked her. The 3rd one is lucky I didn't kick her hindend. I have a tendancy to get really mad if someone runs there mouth at me because I am sick, like it's nothing. That's a real sore spot with me. I am doing these doctor ratings online and saying my peace. I'm not sure about the medical complaint. If I do that, is it going to make my other doctors uncomfortable with me? I don't want that. But I would love to know she'd have to treat her next patient with a bit more respect because of something I did. However, it's no big deal if I don't, I'm not planning on seeing her again. I just pitty the next person.

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    Quote Originally Posted by maryalice40 View Post
    I have been with my family doctor for 11 years, and I love him to death. I just couldn't make it through these problems without him. He has no idea how much I apprieciate it. My neuro is awesome too. He wouldn't even second question it when I tell him I am sick. I am so glad I went back to him. And I have the best gastro you could ask for. I wish I could say I had the best rhematologist around too but that's just not the case. More like the worst. My neuro was right when he said she needed to find a new profession. He said this after my first visit with her, he has no idea what she has done since. I could have hugged him, it felt so good having a doctor that I know without question believed me about being sick. This is just so hard to go through and having a doctor treat you like it's nothing, when you have been through so much torment, it's not right. You have me going here, I think I will file a complaint with the medical board on this doctor and let them deal with her. No doctor should have the right to treat you that way.
    Oh this is such a good story! I hate that you have a horrible rhuemy but I understand the relief you have when there is someone supporting you on this journey! Just the fact that someone confirms that you are not nuts helps 100o%! I also love the way you are standing up for yourself in this. Don't forget to update us as this happens~
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Well honestly, I don't need a doctor to confirm that I'm not nuts, when I know in my heart something is really wrong. It is nice though to have their support and help. But you have to learn more so to believe in yourself and not take to heart things like that rhematologist said to me. Where I did develop depression later on with this illness, I let stuff like that really hurt me in the past, but I am very happy to say this doctor did not have the power to do that to me. All I can really do is get a good laugh over how stupid she really was. I've never had the support I needed from my family either. My kids are first at telling me I'm faking all this and that nothing is really wrong with me. But it's okay. It would of been less stressful mentally if I hadn't been treated the way I was, but I am not letting such petty little things bother me anymore. You can't take it to heart that people treat you that way. Stay strong and focus on the important things like getting better. Quite frankly, that rhematologist makes me sick, I would love her job, and I would never lack the heart in helping someone. Ewww she just makes me sick. I hope she ends up with Lupus and no one will diagnose her. LOL. And she has to quit her job, which quite frankly would be karma paying her back.

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    Maryalice,

    Many times people with health issues fall for the doctor saying "its all in your head". I'm glad to hear you say, You know your NOT NUTS. As far as your family support, it is hard for us to be taken seriously by people who do not have health issues. It's that same old thing, if you don't look sick you can't be sick. We know are body and we know we hurt, so don't tell us we are faking it. I have a supportive family, but I have had others make comments before. I just blow it off, I figure I have more important things to worry about then what others think.

    I am one of the lucky ones, as for as doctors go, my rheumy if Great. She is even on the Lupus Medical board in Georgia and comes highly recommended. She told me that if you test positive once, regardless of what future test show, you have Lupus. So, just blow off that wacky rheumatologist!!!!

    Stay positive, Be Strong and don't let others get you down.
    {{{{{{{HUGS}}}}}}

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    I think for my own sake of mind, I needed to figure out what was wrong and know I why I felt the way I have, but I feel like I've done that, and I think that gives me the peace of mind I need. It's been a rough ride. I have second questioned it before, lack of answers, lack of understanding being diagnosed with a condition with no obvious cause. I have never been one to believe that health problems happen without reason. And without reason, you just have no hope of getting better. And no hope puts you in a slump of a mess you don't want to be in.

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    Quote Originally Posted by maryalice40 View Post
    Well this rhematologist told me that your ANA and autoantibodies are completely meaningless, but it is part of the Lupus criteria, so why should it be blown off as absolutely nothing. That rhematologist was nothing more than a stupid hag!!!

    You may be an average joe schmo, but your intelligence is much higher than alot of these doctors... Thanks for that post. I wish I could of had you at my appt and let you tell her a thing or two. LOL. I just kept my mouth shut, I could have said plenty, but my opinion, she wasn't worth the stress nor worth my time.
    Hi Melanie,

    Readings with your ANA coming in positive is important and Robs right with what he's saying, these rheumo well half of them with what i've read will do anything to fob people off, why train in a field of work and not take it seriously. I MUST BE THICK ONE because mines no much better diagnoses you, then passes me onto other's.

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    Quote Originally Posted by rob View Post
    I've met undertakers with better bedside manners than most rheumo's posess.

    Rob
    another gem by rob.

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