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Thread: Stripped of my diagnosis : (

  1. #51
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    Hello Mary,

    I hope your ok and had a day where it's been a little less pain free. Mary i would'nt dream of asking about you and your x that's your personal business but why i mentioned mine because he was driving me soft at the time.
    Well it's good how you've stopped friends for the sake of your daughter as some divorces get messie concerning children plus your able to still live under the same roof "Murder would have happened on my behalf. lol"
    Well your right concerning your daughter if your ever really bad, then he's there to look after her. You might laugh at this me not having kids but my staff bruno is my 3rd, i had to get good homes for my other's two due to ill health having them when i was single but i said to the hubby before we moved here four years ago i want another and if i take ill, then the pups got you to depend on.lol unless i go on my scooter to walk him which i've not had long, my hubby's been doing it for the last 2yrs.

    Good on ya get some pic's up mate. xxx

  2. #52
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    I wanted the divorce so I guess that is why I wasn't mad. I let him have everything and left. But after the divorce I stayed awhile because the kids didn't want to leave, which was really stupid on my part. He used to be really mouthy. The abuse started during the divorce but I guess it's because he didn't want one nor wanted the kids leaving. But it really messed me up for along time. I can look back on it now and be a bit more understanding of it all, even though there is really no excuse for what happened. It did affect my kids, they tried to turn them against me. It became messy. Nobody killing each other though, I did have to get a protective order on him and his parents if that counts, lol. It's in the past, it doesn't bother me anymore.

    That's not silly, I call my dogs my babies too. I call myself mommy to them, and my ex daddy. LOL.

    Just got up out of bed. I've been sleeping all evening but my morning was pretty good. I've only been on medication for 12 days, this takes time, right? I don't think I can complain too much. So far, I've been doing pretty good.

  3. #53
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    Ah ah ah woman you never told we you was a stunner, some men want their eyes testing. Beautiful Pic

    I noticed that's what happened with mine, he got more mouthy with the divorce, he even had the snip because the doc's told him i could never have kids, oh christ that was well throwed in my face.

    Really though mary it's turned out best in the end and if it gives your daughter the security she needs mores the better, just keep his ears ringing so he knows your about (sorry mate could'nt help myself) lol

    Well if your feeling ok with the medication i am pleased for you and the sleep will do your body some good, i can't imagine how my concentration as been abit better for me today but i have got some emails to answer and that i can't get my head around to many.

  4. #54
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    Thank you so much, and I never told it cause I don't believe it, my self esteem has always been so low. There isn't too much I like about myself, well except maybe where I know I have a good heart.

    I have really bad congenitive issues. I'm waiting for a brain MRI right now through my neurologist, he said he felt he should do it since it's only been going on for a few years. My symptoms are similar to alzheimer's but I am too young to have such a condition. It's been so bad, it affected my driving, and my license probably should have been revoked. I know fatigue can bring that on, but I did things that made no logical sense whatsover and lost time, and sometimes it's like my brain stops functioning. The MRI may come back normal, but I will feel better knowing one is done. It helps me writing notes so I don't forget important things.

  5. #55
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    Mary if your still simular to your pic now, a nice man will come along and sweep you up. It's a shame your self esteem is low because you look beautiful in that picture.

    Well i really hope the MRI comes out showing nothing because to have Alzheimer's at your age christ that's no life what so ever.
    Just remember though mate that lupus can cause fatigue also and less functioning, oh god please don't look on the downside, even though you have to keep your mind open to things because we never know what's coming around the corner.

    You just mentioned what my hubby told me to do earlier start writing down dates/times and what condition's are happening to me, i actually thought oh god here i go it's the remembering to do that which is another thing.

  6. #56
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    Well add 30 lbs (lost 8 since last wk yay!), add the $19000 rhinoplasty procedure, and puffiness under my eyes and I guess I still pretty much look the same. I don't think it's going to happen. All the nice guys I've met, are married. (: I've been by myself for 10 yrs, I doubt it's going to change, and I mind as well be on home confinement with the way I've been going with my health. Even if I can conquer the fatigue, I still cannot do something as simple as taking a walk, then I've over done it, and my back and neck pain flares up before I go to bed to the point I can't deal with it. I don't like these limitations.

    I'm not worried about alzheimer's because I know I'm too young. Forgetting things doesn't bother me, it's when I forgot things I shouldn't that gets me worried, like stopping at a stop sign or a stop light, or behind a car, just the last second it was triggered. I haven't had any recent problems with that but I still, recently, was driving one way when meaning to go another. I also was one place and end up elsewhere and couldn't remember the time in between, just standing there, not knowing I was in the world, then I snap out of it, and think how did I get there, and why couldn't I remember. And I was just standing there doing something dumb that made no sense at all. That's the kind of stuff that made me think maybe I should tell my neuro about it. But I just wanted to talk to him about it, I never dreamed he'd want to do an MRI.

    I think it's going to be okay. The problems probably are manifested from the fatigue. Very slim chance it might show MS but I know when I was evaluated for it in 2005, the MRI didn't show anything. I'd really like to get to the bottom of the neuropathic issues I have. The tingling is from head to toe and it hurts. Imuran was calming it down but now it's crazy again. It makes me have pressure in my pelvic area when I lay down and I cannot go to sleep until I empty my bladder about 5-10 times, and it's still hard, even a drop of pea, I can't hold when I lay down cause it feels so annoying. When I'm awake, it doesn't bother me like that.

    Usually my doctors can't explain why my problems are occuring. So getting tired of that too. My shortness of breath and chest tightness on exersion is a good example, not that I care why that is occuring, but my doctor thought it might be a blockage, did an EKG and was having too many PVC's. I also get those with exertion or my heart beat just speeds too fast. Stress test, perfectly normal. Amazing my blood pressure was so low that day, and it is never that low. I'm very happy that test was normal but I still get tired of this in the event something is seriously wrong. If my neuro doesn't find the reason behind my neuropathic issues, I am going to go ballistic.

    I have to keep a notebook by the table. I write things down I'm afraid I'll forget like paying my son's car payment or to go to an appt or whatever. I missed my appt with the 1st rheumatologist I was supposed to go to, because I messed the time up I was supposed to be there, then I end up with a ditz.

    So tired this morning too. That plaquenil is starting to keep me from falling asleep at night. Is there a stimulant in that medication? I've also been getting this weird pain lately where my pulse beats really hard in a particular area and causes horrific sharp pain in my abdomen. In my chest last night, it wasn't quite as bad. What the hell is that???? It's not the only weird pains I've been having. I'll lay down and it feels like my kidney is hurting really bad, so I have to roll over to the other side, and it calms down.

  7. #57
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    Quote Originally Posted by chikititalinda View Post
    True, that makes sense. Anyway as far as the test goes, I haven't been re-tested since I started the plaquenil. When it came back positive it was low but positive none the less. On top of it all I was still on prednisone and alot of my symptoms had been relieved.
    Hello,

    How are you feeling now and have any more tests been done and what have the specialist's had to say, please let we know.

    Terri xxx

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