I am a 47 y/o mother of two daughters, 21 and 19. My SLE was diagnosed 12 years ago, and I am currently on Plaquinil, Quinacrine, Imuran and am enrolled in a double blind study of a monoclonal antibody drug specifically for lupus. I suspect I am getting the drug, but I will never know for sure. Have just had one cycle of the "drug" so far.
My younger daughter has undifferentiated connective tissue disease, Ehlers Danlos Syndrome, adrenal insufficiency and various other problems. Enrolling in the drug study was a big step for me because I have been taking care of my girl full time for 5 years, and not really caring for myself.