I know how you feel. I was diagnosed a year ago in June, and with meds I started to feel better. I too started to get pretty sick soon after being diagnosed, but I think that was because it took some time before the meds start working.
Now I am starting to feel pretty sick again. Not sure why. I think I am going through the grieving process, but I am not sure what stage I am in at the moment. I seem to fluctuate between stages. I am trying to adjust to the new 'normal', whatever that is.
My husband and I enjoy going on long walks together, and going on holidays. Now that is rather impossible. We have been trying to work out how we can continue with the idea of taking long walks together, and going on holidays. We just have to make some accommodations so we can still have fun.
You said you can't wait to get back to Glacier National Park and go kayaking and hiking. I am interested in hearing some of the strategies you take to still enjoy those things, because we also enjoy kayaking and hiking.
Diagnosed with Lupus - 22 June, 2010