Hi there! I bet I know who your husband is! He told us about your love of the bikes and the outdoors. I am really glad that you both found us and I hope that we can be of some help to you.
Many of us go through a long period of being ill and being told that we have fibro (which many of us do), depression and a host of other things long before we actually get a diagnosis of Lupus. Many of us actually have those things but they go along with the Auto Immune issues not instead of them. Because we are ill for so long before we find out exactly what is making us ill we often do the exact things that make us worse or flare as we call it. The good news is that knowing what you have will allow you to figure out what things cause you to get worse and what things to do that will help you feel better.
The most important thing that I want to share with you is this: You are not lazy because you sleep so much. You are not depressed because you can't get out of bed (well, depression often goes along with Lupus but that is another topic). You are not a hypochondriac because there always seems to be something wrong. There is life with Lupus. It may take a bit of time to figure out exactly what things work for you and what makes it worse but you will most likely figure it out. Listen to your doctors. Take your medications and although life will be a bit different you will be able to enjoy that family that you love so much
Welcome to our WHL family! I look forward to getting to know you and please do not hesitate to contact me if there is anything that I can help with.