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Thread: Hello..... my hubby found this site last night.

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  1. #1
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    Default Hello..... my hubby found this site last night.

    I got a call from my doctors office, and was told that I have been diagnosed with Lupus. They are requesting a referral to a specialist. I know very little to nothing about Lupus. I was told a couple years ago that I had FibroMy which seemed to be getting worse and worse, which I suspected was due to stress, so this diagnosis sort came out of left field.

    I'm married, have one daughter, one step-daughter and one step-son, plus three (former) step daughters that are still very much a part of my family. We have three grand children. I am into interior decorating, true crime, yarn crafts, reading, riding motorcycles (on the back with hubby) and water (rivers, water parks, beach, ocean, streams, water....... period).

    I am looking forward to learning and sharing and knowing.

    Nanc Hogan

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    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
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    Hi there! I bet I know who your husband is! He told us about your love of the bikes and the outdoors. I am really glad that you both found us and I hope that we can be of some help to you.

    Many of us go through a long period of being ill and being told that we have fibro (which many of us do), depression and a host of other things long before we actually get a diagnosis of Lupus. Many of us actually have those things but they go along with the Auto Immune issues not instead of them. Because we are ill for so long before we find out exactly what is making us ill we often do the exact things that make us worse or flare as we call it. The good news is that knowing what you have will allow you to figure out what things cause you to get worse and what things to do that will help you feel better.

    The most important thing that I want to share with you is this: You are not lazy because you sleep so much. You are not depressed because you can't get out of bed (well, depression often goes along with Lupus but that is another topic). You are not a hypochondriac because there always seems to be something wrong. There is life with Lupus. It may take a bit of time to figure out exactly what things work for you and what makes it worse but you will most likely figure it out. Listen to your doctors. Take your medications and although life will be a bit different you will be able to enjoy that family that you love so much

    Welcome to our WHL family! I look forward to getting to know you and please do not hesitate to contact me if there is anything that I can help with.
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Hi Nanc,
    Welcome to WHL. I posted on your hubby's thread. He's a real sweetie to be so concerned and involved. Keep doing what you have started and learn together about what is going on with you. As I told your hubby, you can learn to deal with this stuff and still have a fun life.
    You two sound much like Jeff and I. We have five grown children - 4 girls and a boy, and three wonderful grandsons. I hurt and I have to move slowly, but we still travel and have fun. We live just north of you - on the Monterey Bay. I've only lived here a year and a half, but I really love California.
    Keep in touch, and I hope that we are able to help you both and answer questions as they come up.
    Hugs,
    Marla

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    Hello Nanc,

    Welcome to our lovely family of the WHL and it's lovely to have you with us, there's so many threads to venture through and you'll learn so much about the condition, my hubby found the site for me also while i was sleeping.lol and it was the best thing i did joining they're terrific people on here so you won't go wrong with advice.
    You'll know more when you see a rheumo and more bloods are took as there's A1 Diseases and autoimmune Diseases also, it can be abit of a nightmare, as i can see you love your out sports but it's according to if it affects your skin, some people it does and they have bad flares such as myself but until you see a specialist just be careful concerning the heat.

    ~Hugs Terri~ xxx

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    Hello Nanc, And so glad to have you here. I like your self was also years ago first diagnosed with fibro MY witch also kept getting worser and worser as the years passed by. Till all my
    autoimmuine diseases started overlapping and progressing very fast and took dr's years and lots of test and blood work to get it all sorted out. I also love the outdoors and river's and flower gardening. There are lot's of very wonderful people here and lot's of information.
    Hope you have a great day! ~Diane~
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

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    Welcome to the family! I found this site a few months ago immediately after my diagnosis and it has ben very helpful. Please ask questions whenever you have them as someone likely has an idea of how to find the answer if not already has the answer to share with you.
    Take care,
    Bunny

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