Hi my name is kym. I am 28 and was recently diagnosed with SLE in Dec 2010. I have placed on lots of different medication like avara (methotrexate made me worse), plaquenil, predisolone. Since it all started the doctors have continued to alter my medications because none of them seem to agree with me. I have had side effects to the medications- like weight loss excess of 25kg, vomiting, had to change my diet and i have even started to loose my hair. The hair thing is the hardest to deal with.
Does this get easier as time goes on or is it a constant battle? I don't normally take medication at all- is SLE something that can be managed without taking such harsh drugs?