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Thread: Feeling a bit frightened - waiting for diagnosis

  1. #41
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    Actually, would you mind if I asked you something? When I was first diagnosed with PTSD, I was doing well with psycotherapy and saw my GP at the same time. He wouldnt prescribe anti-depressants at that time because according to him 'I didnt meet the criteria', however he prescribed Amytriptiline (?spelling) to help with the night terrors and poor sleep patterns I was having.

    I managed three days worth and they dried my mouth out so much and my asthma was terrible, I also had issues with sleepwalking, driving my husband nuts as you can imagine.

    GP took me off them and put on my notes due to the respiratory reaction to them, I wasnt to have anti-D's again.

    Well last year I was bitten by a redback and had to spend the night in hospital while I had anti-venom, I forgot to tell them I dont react well to certain drugs/sedatives and they gave me a sleeping tablet and I reacted again, I got so wheezy and chesty.

    I couldnt even take the morphine they gave me. I have never really been able to tolerate stuff with sedative properties - it was on my notes in the UK but I forget here to tell people as generally I am quite healthy aside from asthma.

    So with that in mind, if I ask him for something to calm me down, do you reckon there will be something that doesnt have sedative properties or anything that will dry my mouth out any more than what it is already? I might ask him tomorrow.

    On a better note, tonight I have been downloading my favourite tunes to my iPhone, tunes to remind me of happier/healthier times and my god has it given me a lift, I have about $20 worth on my iphone now for the car tomorrow. I have also watched clips of my favourite funny movies to make me laugh and my husband had to come into the bedroom to see if I was OK as I was laughing that much.

    Laughter really is a good medicine, can we post clips to youtube on this site - perhaps we should have a thread of happy music and movies we like to cheer ourselves up. Tonights movie was a clip from the film Bruno, I was laughing so much I couldnt breathe.

    Thanks again for replying ladies, I am telling myself that once I know what I am dealing with, I can move forward but I shall deffo speak to the doctor and ask him if I can have anything that wont sedate me or cause a dry mouth - there must be something I am sure.

    Right, off to find some more 'happy music'.


    Quote Originally Posted by tgal View Post
    In all of your googling have you figured out how AI diseases affect the brain? Have you read about how many of us have to take anxiety/depression medicine not only because of our situation but because of what is happening in our brain? If you are not already on something I suggest you talk to your doctor and if you are, I suggest you talk to him/her about raising it. As has been said many times stress is the worst thing for us and you, my dear new friend, are going through a roller coaster of it.

    It is not a weakness to get on something for depression when you are dealing with this. Just as the rest of your body is going crazy so is what is happening in your brain. I really think it would help for you to get your emotions leveled out a bit. It will help not only your mind but also your spirit.

    "Drops off the Dr Coat and reminds everyone that I am not a Dr. I only play one on TV "

  2. #42
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    OK Corella, why are you still awake? You really need to try and find something to relax you so you can sleep. All the information that is frightening you will keep you awake half the night as you struggle to understand it all. When you feel up to it check out this thread. It tells you all the funny things about having brain fog.

    http://forum.wehavelupus.com/showthr...ighlight=brain

    I suppose you might be wondering why I am still awake. I went to sleep around 9pm, but keep waking up in pain. Just took some more pain meds at 12, and waiting for them to start working. Try to have a good night, so you can cope more positively in the morning
    Diagnosed with Lupus - 22 June, 2010

  3. #43
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    Well I went to my GP test initially for my PAP test and he said there isnt anything he can really give me regards to anxiety with my asthma but told me my panic/fears were entirely normal. He also said alot of the symptoms will be magnified due to me not having a diagnosis and that again is normal. He laughed about the waxing episode when I looked crestfallen at the thought of not getting it done and he said I can get it done again but not let it grow to the length I did as that will cause more bruising - and to keep it religiously every 4 weeks so there will be less hair but I think I might wait to see the specialist to clarify this to be safe.

    He told me under no circs am I to get pregnant (I cant anyway - it just never happened), as 'the medication the specialist might put me on cannot be taken in pregnancy'

    It was nice to talk to him and if not a bit surreal while he was 'down there' doing the PAP test - I had to giggle at that. He has recommended some moisturising eye drops for my eyes and said to keep a note of all symptoms till I see the specialist in a months time.

    He like you ladies, has promised me that once we know what it is we can move forward but he said he is almost certain it is an autoimmune disease of some sort. And the 'up and down' of emotions is to be expected but to allow myself a small amount of 'worry time' or to cry if I need to and then pick myself up and get on with other stuff.

    Deffo helped me talking to him and I think once I know what is wrong, I am going to take advantage of the free psychologist appointments our company offer, not to mention the questions I will ask the specialist so I am not so scared.

    Just out of interest, are you allowed the odd drink with Lupus? My husband is a chef and sometimes wine goes down very well with what he cooks. Daft question, I will avoid if I have to no worries but if I can have the odd beer or glass of wine then it would be nice.

    And thank you all for your advice and for listening - it means alot, I wish I could meet you all.
    Last edited by Corella; 05-02-2011 at 01:17 AM.

  4. #44
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    ask the rheumy, when he puts you on medication.
    some drugs are affected by alcohol.
    plaquenil, (a common drug we use) does not work when there is alcohol in your system.

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    My GP was talking as if I would definitely go on meds, Im hoping I wont, I am hoping he will say it isnt Lupus and I know that sounds naive but I cant help it.

    Tonight I am doing a bit of my 'music therapy' to keep me in a happy place and I have been blasting out my favourite tunes on iTune which is so good at keeping my mind of stuff.

    Although my little Yaris was a mobile disco this morning driving to work.

  6. #46
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    The question of drinking will simply have to do with your meds, As Steve said. There is no "lupus" rule that says you can't drink however if your liver is compromised at all it could be a problem. That is another question that is so individual I would suggest asking your doctor

    Glad you are feeling better emotionally and that the doc visit made you feel better. You are going to make it through. It will get better!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

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  7. #47
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    Hi Corella,

    Lovely to hear your occuping yourself with what you love music and taking your mind off it but i'm not sure if you can add things from youtube, you could always ask Rob,tgal and saysusie about it.

    Refering Anti-depressants i took them for years and you always get dry mouth and tiedness but to how sevier depends on what medications your taking with them plus i've checked to see if there's anything that does not have these side affects otherwise and apparentley anti-depressants come with this side affects.

    There's only nerve tablets which help with anxiety, that's why i'm prescribed valium for quite a few reasons, just one tablet of 5mg carms me within 15mins, it sounds like your GP is being careful because of your asthma. Corella see the doctor you've got to see about the shaving like he said to make double sure, incase you hurt yourself even though he's given advice.

    Corella i'm the same as you never got pregnant which Lupus or autoimmunes diseases can cause but 7yrs ago roughly i was sterilized anyway due to my fits to make sure.

    Really he can't state that he's almost certain you don't have autoimmune disease and neither will yourself until bloods have been done furthur and you see the specialist and then know your results.

    Terri xxx
    Last edited by Peridot20_Gem; 05-03-2011 at 09:53 AM.

  8. #48
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    Not sure where the youtube question is but you can add video into your posts by simply clicking on the thing that looks like a film strip just above where you type on the left side (next to the thing that looks like a thought bubble). Let me know if you need more help!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  9. #49
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    Mari,

    Youtube is for downloading video's etc onto and then getting the url to add to a site, so corella mari as answered your question for you mate.

  10. #50
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    Quote Originally Posted by Peridot20_Gem View Post
    Mari,

    Youtube is for downloading video's etc onto and then getting the url to add to a site, so corella mari as answered your question for you mate.
    LOLOL Yeah Terri. I know what Youtube is. What I asked what who asked the question. I didn't see it. I think we all are having issues with brainfog today!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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