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Thread: Feeling a bit frightened - waiting for diagnosis

  1. #31
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    Hi Corella,

    Naughty naughty woman just you be very careful what you went through being waxed is to do with systemic Lupus which i have, i know things get annoying but shave yourself instead with a razor to stop complications.

    I do know there is something you can take to stop the dryness to the mouth can't remember the name it was mentioned ages ago but your GP might know of it but i also have dry eyes but when they tested them my score came as 6/10 they worry more at 2 or 3 out of 10 but there may be something you GP can give you to help in the meantime.

    Corella i've added some info below to do about the waxing and i hope it helps mate. Terri xxx


    Waxing is an effective way to remove unwanted hair and is one of the most common skin care services performed in a salon. It is usually safe, quick, and easy; however, there are precautions you should take before you go in for a waxing treatment. Each state has different regulations concerning who is and is not allowed to perform waxing services. For example, in the state of Florida, cosmetologists and estheticians are the only beauty professionals who are legally permitted to wax clients. In some states, it takes no special training to perform a waxing treatment. It is important to ask your technician what training he or she has received to be sure that you receive a safe procedure.

    Before Your Waxing Treatment
    There are a few things you should avoid before receiving a waxing treatment. Do not shave for at least three days. Hair needs to be at least 1/4 of an inch long so that the wax can grab hold of it. Do not use strong exfoliators, in order to prevent skin irritation and damage. Avoid exfoliants that contain alpha hydroxy acid, salicylic acid, or enzymes as these can cause your skin to be sensitive and you may end up with skin breakage or scabs. It is a good idea to exfoliate your skin using a gentle scrubbing motion before your waxing treatment to remove dead skin cells; just remember to not scrub too hard or use harsh products. Avoid caffeine and alcohol a few hours before receiving a waxing treatment as they may make your skin sensitive. If you take birth control pills, are pregnant, or take antibiotics or hormone replacement therapy, it is recommended that you do a small patch test to see if your skin is too sensitive for waxing.

    Contradictions to Waxing
    There are certain medications and health conditions that make waxing a bad idea. If you take blood thinners or have diabetes or sensitive skin, you may want to skip waxing and use another type of hair removal procedure. Since sometimes the skin is broken during a waxing treatment, people who take blood thinners may experience excessive bleeding, and diabetics run a greater risk of infection. People with sensitive skin may have swelling and redness after waxing that can take several hours or days to clear up. If you have rosacea or broken capillaries, avoid waxing the affected areas. Do not receive a waxing treatment if you take the skin care medication Accutane, are receiving chemo-therapy, or have varicose veins. People that have lupus or AIDS are also encouraged not to be waxed.

  2. #32
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    Looks like I shall probably have to shave from now on, it hurt so much today I couldnt believe it. Although last time I shaved down there I nearly circumcised myself.

    Tonight I am feeling utter fear and panic again, I cannot believe it. I know I am ill but I dont know how much is in my head because I am thinking of it all the time but I am feeling very weak and scared and I dont want to lose my hair and am wondering if it is a given that I will. My best friend is in end stage renal failure from Lupus and hasnt lost her hair at all and she goes to the Lupus clinic and many seem to look so well - its all too confusing.

    I feel like crying my eyes out, I think this is my fault - it must be, surely the body doesnt just turn against you like that without me having to have done something to cause it?

    I used to get the weak really weak feeling every few days, then just early hours of the morning and now I have it right now - I do not understand what is happening and if I wasnt short on tear production I would bawl my bloody eyes out.

    I am so sorry for feeling sorry for myself but this is awful, I have forgotten what it is like to be normal I really have and I dont know how this will all end up or where I will end up or anything.

    Just wish it was a bad dream, honestly my brain is stuffed up, I cannot concentrate or focus and I cannot imagine this going in to remission - do you think it will?

    And I want my Mum.

  3. #33
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    Well i'd shave myself if i was you, just take a nerve tablet before hand to keep your hands steady.lol that did make me laugh mate.

    Your panicking and feeling like you are because your constantely worrying and i hope you know that worry and stress is a bonus for lupus it's the biggest kick it gets for making you worse, so try not to stress yourself out i know it's easier for me to say but i have noticed if my depression kicks off, it makes me feel worse then the crying starts and refering your hair try not to look at the position your friends in, it's what your going through, my hair comes out like mad but still grows good. Please try and look at things abit more positively until you've seen someone and know properly what your really dealing with.

    Well i could say the same about myself it being my fault but i was born with it, the doctor's told me it was inheditery so it's either my mom or dad who take the blame and they're not here to know anyway but my dad gave quite alot of things off which matched what i have.

    Corella as you know we all have different symptoms of Lupus and it treats we all in different ways, the drugs press the symptoms down abit but at the end of the day none of we will really know where we'll end up with it, so your not on your mate.

    It sounds like your suffering with foggyness of the brain also, that does knock you about you can't think straight, if your doing anything it throws your mind off what your doing plus i don't know if you'll go into remission, i'm not there and my symptoms are getting worse.

    I was told by my Derm specialist that usually with Lupus people usually get 2 or 3 things with it and for me to be told i have the lot how do you think i felt, it shocked me but life goes on and i do have a game coping with the pain and effects it gives me.

    You'd love your mom and here's me told my husband i wished i'd got my dad we was so close and when he died that was another thing which cracked me up and i had to have councilling for 3 solid years but i still cry now on certain dates.

    I know it's hard but try and take your mind off it by either reading or something to help the depression part.

    ~Hugs Terri ~ xxx

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    Corella,

    Many people with Lupus never lose their hair. Some lose small patches but not enough to make it show. I know this is a scary time but try not to stress. Stress simply makes us more sick. My mom used to tell me "Don't borrow trouble" which simply means try not to worry about things that may or may not happen. Try to take a few deep breaths and see what can be done about the symptoms you are having right now. The more you stress over what may never happen the more the other symptoms are going to come out and cause problems.

    Never forget that we are here for you
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  5. #35
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    Thank you so much both of you for replying. I had my usual early morning weakness this morning but got out of bed feeling better, mornings are best for me as I have rested. I panicked this morning when I noticed two small spots on my cheek, I am very pale so it looks quite noticeable, now before this all kicked off I would have thought 'bugger, Ive got spots' but now I am thinking ' bugger, this is THE rash' So I have mentally told myself off, took an antihistamine as I do get itchy with every spot or bite, made myself a drink and am now chilling out on the bed.

    I shall talk to my GP tomorrow when I have my PAP test and also ask him about the waxing - seriously, if I shave it I will have no 'lady garden' left I am sure so I shall see what he thinks (not about my lady garden but the waxing) and I shall ask him for something for my eyes and mouth to tide me over.

    And may I just say, I am so not looking forward to my Pap smear - there is something not nice about someone fishing around in that area, perhaps I am showing my age.

    Thanks again for your support girls, I am up and down like anything with my emotions, today I am quite calm about it but as you have all pointed out, once I know what I am dealing with then I can move forward and tackle it.

    I had a moment the other day, if say someone attacked me and tried to hurt me and end my life I would fight with every breath in my body to stay alive - we all would wouldn't we? Well if I have an autoimmune disorder - lupus or whatever it may be, I have decided that I am not going to let it take my life any more than I would anyone or anything else.

    (but please remind me of this when I am having a down day!)

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    Quote Originally Posted by Corella View Post
    Thank you so much both of you for replying. I had my usual early morning weakness this morning but got out of bed feeling better, mornings are best for me as I have rested. I panicked this morning when I noticed two small spots on my cheek, I am very pale so it looks quite noticeable, now before this all kicked off I would have thought 'bugger, Ive got spots' but now I am thinking ' bugger, this is THE rash' So I have mentally told myself off, took an antihistamine as I do get itchy with every spot or bite, made myself a drink and am now chilling out on the bed.

    I shall talk to my GP tomorrow when I have my PAP test and also ask him about the waxing - seriously, if I shave it I will have no 'lady garden' left I am sure so I shall see what he thinks (not about my lady garden but the waxing) and I shall ask him for something for my eyes and mouth to tide me over.

    And may I just say, I am so not looking forward to my Pap smear - there is something not nice about someone fishing around in that area, perhaps I am showing my age.

    Thanks again for your support girls, I am up and down like anything with my emotions, today I am quite calm about it but as you have all pointed out, once I know what I am dealing with then I can move forward and tackle it.

    I had a moment the other day, if say someone attacked me and tried to hurt me and end my life I would fight with every breath in my body to stay alive - we all would wouldn't we? Well if I have an autoimmune disorder - lupus or whatever it may be, I have decided that I am not going to let it take my life any more than I would anyone or anything else.

    (but please remind me of this when I am having a down day!)
    You go girl!!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Corella I applaud you for saying I have decided that I am not going to let it take my life any more. I decided not so long ago that I am not going to let Lupus control my life, I am going to still have fun and enjoy my life. But then when I have a really bad day (days or weeks), I feel disheartened. Then I remember what I promised myself, dust myself off and try to have fun in whatever I am doing. Now if I cannot move and all I can do is rest on the couch watching TV, I turn to a programme I really like, and HAVE FUN !!! You need to remind yourself every now and then, that life is still a wonderful thing, even though you are in incredible pain.
    Diagnosed with Lupus - 22 June, 2010

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  9. #38
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    I had a bit of a melt down tonight with my husband, and when I cry my eyes burn like hell for some reason, anyway it always seems to be at night that I get most scared.

    I rather stupidly began looking up on google and reading about higher risks of various cancers if you have lupus and what scared me, was the fact my cholesterol is the high end of normal and really should be lower and my heart disease ratio is increased, so of course in my wisdom (not!) I checked it out that my risk of heart disease is increased if I have lupus and bearing in mind my cholesterol has always been very low, my new increased results have me panicking - but then again at the moment everything scares me, including my face first thing in the morning!

    I already cannot maintain my vitamin D levels and are on supplements with blood tests twice a year, I take Biotin for hair and nails, have done for nearly 2 years and it works, so my hairdresser said yesterday, and now I am taking Omega fish oils - GP recommended them to aid my joints.

    So can someone please give me a kick up the butt and stop me from googling my entire life away and frightening myself with what may or may not happen if I have this disease.

    And feel free to slap me when I want to cry - my eyes cannot spare the tears and if anyone has a boiled sweet I could suck to stop my mouth from feeling like a sandpit that would be nice.

    As I said earlier, up and down - I cant keep up with these emotions.

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    In all of your googling have you figured out how AI diseases affect the brain? Have you read about how many of us have to take anxiety/depression medicine not only because of our situation but because of what is happening in our brain? If you are not already on something I suggest you talk to your doctor and if you are, I suggest you talk to him/her about raising it. As has been said many times stress is the worst thing for us and you, my dear new friend, are going through a roller coaster of it.

    It is not a weakness to get on something for depression when you are dealing with this. Just as the rest of your body is going crazy so is what is happening in your brain. I really think it would help for you to get your emotions leveled out a bit. It will help not only your mind but also your spirit.

    "Drops off the Dr Coat and reminds everyone that I am not a Dr. I only play one on TV "
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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  12. #40
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    Hi Corella,

    You need to stay positive and i am a big believer on reading what you have wrong with you or even buying doctor's books but your reading about Lupus and the way you are in yourself until you know exactley what you have, your mind will wonder to ( have i got this, have i got that) and at the moment with spots appearing and how you feel concentrate on finding out what you do have mate because it could take you to the extent where you thinking you have everything.

    I'm hoping there's not to much connected with the Lupus, as it's alot for we all to deal with. Look at the positive side of what your doing to help yourself discussing things with your hairdresser and now taking omega fish oils to help yourself, find info out which you think may help you to deal with it more.

    I get down like yourself and been there for years on so many occassions plus i blurt my eyes out but life goes on and we all cope in different ways, so try and think more positive till you actually know your outcome with Lupus.

    ~Hugs Terri~ xxx
    Last edited by Peridot20_Gem; 05-03-2011 at 08:12 AM.

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