Welcome to this site. Waiting 3 weeks to see a rheumatologist is pretty good, I had to wait 8 weeks and I had kidney involvement. I know it will go very slow for you, but keep positive.
Regardless if the doctors diagnose you with Lupus or not, it is probably a good idea to look at your lifestyle:
1. Eat a very healthy well balanced diet, including drinking plenty of water. If you have Lupus, alf lafa sprouts are the only food you should avoid.
2. Exercise regulary. If you have joint pain you still need to exercise to keep them from freezing up. I know sometimes it is painful, but on bad days just go through a range of gentle movement.
3. Get plenty of sleep.
4. Keep your stress level down. If your lifestyle is very stressful in the first place, work on some techniques to help you to cope with the heavy demands
5. If you look afteryourself, Lupus can only be a bit annoying, like a constant small pebble in your shoe Sometimes you might not even notice it there, other times, OH MY GOSH - such a tiny thing can be so painful.
6. Sometimes it doesn't matter how well you look after yourself and take your medication, you can still get very sick. Lupus is very unpredictable. However, if you don't look after yourself you WILL have some very bad flares.
7. Take ALL the medication your doctor suggests. Don't think that you are starting to feel a bit better and you don't need your medication anymore.
No medication = BAD NEWS!!!
8. Lupus is rarely a death sentence now days.
9. IF you are dignosed, research on the greiving process, and remember it is only natural to feel the range of emotions you feel. It is a process that we all go through.
10 . Forget about being sick - and HAVE FUN. Don't let Lupus rule your life, you just need to learn to live with Lupus (like the small pebble in your shoe - annoying, but make sure it doesn't stop you from living)
Last edited by Linda From Australia; 04-16-2011 at 01:01 AM.
Diagnosed with Lupus - 22 June, 2010