Results 1 to 10 of 23

Thread: hello from Canada

Hybrid View

  1. #1
    Join Date
    Apr 2011
    Location
    Canada
    Posts
    31
    Thanks
    30
    Thanked 0 Times in 0 Posts

    Smile hello from Canada

    Hi, i am 30 years old, live in Hamilton, Ontario(Canada) and I have been diagnosed with Lupus just a month ago. so I'm still trying to cope with this new diagnoses. They told me that my Lupus is related to Ulcerative Colitis which I have been living with for 9 years now.
    A month ago I had absolutely no idea what Lupus was, and today....well I am learning new things every day.
    What puzzles me now is that my family DR. didn't figure out what was going on with me and took her months to send me to Rheumatologist. I told her all my symptoms and it was as if I copied it from a book or a website(now I know it). Here is a list of symptoms I kept complaining about:
    Arthritis pain ( very bad) which they tested me for rheumatoid arthritis
    my whole body was in pain (muscles, joints, skin, scalp, face)
    very bad headaches 24/7 (took painkillers every 4 hours for 2 months straight which helped only sometimes)
    chest pain
    shortness of breath
    low grade temperatures
    rash on my eyelids
    EXTREME fatigue
    and more minor symptoms like sensitivity to light etc.
    and I didn't mention hair loss and ulcers in my mouth and other area because I didn't know it could be related.
    I did tell her I was more irritated and depressed, etc.(which they are still not treading me for)
    I had pneumonia and sinus infection pretty bad and no antibiotics worked...my doctor was confused, and didn't even mention Lupus..she had no idea so finally sent me to Rheumatologist. he sent me for a bunch of blood tests and I had an answer.

    I'm happy that I didn't find out about my lupus like some other people on this website. With hospitalization due to heart-attacks etc.
    It's heartbreaking reading other people's stories.

  2. #2
    Join Date
    Mar 2011
    Posts
    170
    Thanks
    46
    Thanked 23 Times in 22 Posts

    Default

    Hi twinmama, glad you found this board.. I am newly diagnosed In Feb also and everyone here has been so helpful to me. Like you i find myself wondering just how long i have been this way without the Dx.
    There are alot of people here that are alot worse then i am though and they always pitch in to help lift you up when your down or to answer your questions.. Welcome

  3. The Following User Says Thank You to craftkeeper For This Useful Post:

    Twinmama (04-11-2011)

  4. #3
    Join Date
    Mar 2011
    Location
    pinjarra, western australia
    Posts
    2,913
    Blog Entries
    1
    Thanks
    1,393
    Thanked 1,616 Times in 1,106 Posts

    Default

    hi twinmama, there are people here from all over the world. also almost every age is covered.
    welcom. look around at the other threads, your symptoms all sound lupus related.

  5. #4
    Join Date
    Feb 2011
    Location
    Peterborough ,Ont Canada
    Posts
    150
    Thanks
    29
    Thanked 7 Times in 6 Posts

    Default

    Welcome twinmama!!
    I to am from Canada!! Just a small town northeast of Toronto, outside of Peterborough called Keene!!
    I hope you find this board useful, I certainly did!!

    Colleen

  6. The Following User Says Thank You to Colleenc For This Useful Post:

    Twinmama (04-11-2011)

  7. #5
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,521
    Thanks
    1,547
    Thanked 1,741 Times in 1,211 Posts

    Default

    Hi Twinmam! Welcome to whl!

    OK, I wrote out a very long post and apparently hit a button that took it all away! (it was the third time third time this morning)! With that said I am just going to welcome you and I, or someone else, with discuss the possible reason for your lack of diagnosis later in the day!

    Once again, welcome to WHL! We are glad to have you as part of our family!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  8. The Following User Says Thank You to tgal For This Useful Post:

    Twinmama (04-11-2011)

  9. #6
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
    Join Date
    Nov 2001
    Location
    Victorville, California
    Posts
    7,708
    Blog Entries
    9
    Thanks
    1,572
    Thanked 918 Times in 581 Posts

    Default

    Quote Originally Posted by tgal View Post
    Hi Twinmam! Welcome to whl!

    OK, I wrote out a very long post and apparently hit a button that took it all away! (it was the third time third time this morning)! With that said I am just going to welcome you and I, or someone else, with discuss the possible reason for your lack of diagnosis later in the day!

    Once again, welcome to WHL! We are glad to have you as part of our family!
    Tgal; You are so funny I know you must be frustrated when that happens because it happens to me more times than I care to mention. And it only seems to happen when I feel as if I've written something very profound and wise (lol). Then, I hit a button and "poof", it's all gone. Of course, due to brain fog, I am completely unable to remember anything that I had just written! So, we are in the same club!

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

  10. #7
    Join Date
    Feb 2011
    Posts
    2,036
    Thanks
    345
    Thanked 365 Times in 315 Posts

    Default

    Quote Originally Posted by Twinmama View Post
    Hi, i am 30 years old, live in Hamilton, Ontario(Canada) and I have been diagnosed with Lupus just a month ago. so I'm still trying to cope with this new diagnoses. They told me that my Lupus is related to Ulcerative Colitis which I have been living with for 9 years now.
    A month ago I had absolutely no idea what Lupus was, and today....well I am learning new things every day.
    What puzzles me now is that my family DR. didn't figure out what was going on with me and took her months to send me to Rheumatologist. I told her all my symptoms and it was as if I copied it from a book or a website(now I know it). Here is a list of symptoms I kept complaining about:
    Arthritis pain ( very bad) which they tested me for rheumatoid arthritis
    my whole body was in pain (muscles, joints, skin, scalp, face)
    very bad headaches 24/7 (took painkillers every 4 hours for 2 months straight which helped only sometimes)
    chest pain
    shortness of breath
    low grade temperatures
    rash on my eyelids
    EXTREME fatigue
    and more minor symptoms like sensitivity to light etc.
    and I didn't mention hair loss and ulcers in my mouth and other area because I didn't know it could be related.
    I did tell her I was more irritated and depressed, etc.(which they are still not treading me for)
    I had pneumonia and sinus infection pretty bad and no antibiotics worked...my doctor was confused, and didn't even mention Lupus..she had no idea so finally sent me to Rheumatologist. he sent me for a bunch of blood tests and I had an answer.

    I'm happy that I didn't find out about my lupus like some other people on this website. With hospitalization due to heart-attacks etc.
    It's heartbreaking reading other people's stories.
    Hello Twinmama,

    Welcome to our large family of the WHL and it's lovely to have you with us and to share your experiences.

    I'm so pleased your learning all about Lupus because it can be a shock to the system and i hope the threads are helping in so many ways.

    I was diagnosed 3yrs ago but was actually born with it and over the years had alot go on and now with the Lupus trying to cope as well but like yourself i have swelling of the joints and they go inflammed/headaches/chest pain & lung pain [Lupus can cause the muscles of the lungs to swell and i'm on 3 different inhaler's a day]freezing cold of the raynauds/extreme fatigue/ foggy head/ hair loss/ manic depression & that's the worst symptom for causing it to trigger.

    All of us on the site suffer like your doing, alot master it so well and some not so good but it's all down to the person themselves.

    ~Hugs Terri~ xxx

  11. The Following User Says Thank You to Peridot20_Gem For This Useful Post:

    Twinmama (04-11-2011)

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •