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Thread: Breathing problems?

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    Default Breathing problems?

    I told my doctor about how I had trouble breathing a few days ago and it felt as if I couldn't catch my breath. Even if I took a deep breath it just didn't feel like I was getting enough air. Almost like I ran a marathon and was trying to catch my breath but I hadn't ran and breathing didn't help. He looked at me weird and said "your symptoms are very strange" and that was kind of it? Haha he didn't really answer me or seemed concerned about it so much but I don't know. He did ask if I had anxiety attacks but I don't. Any else have this or thoughts on it?

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    i quite often have the same, (when in a flare).
    try slow deep breaths.
    concentrate on slowing the heart rate down, and the breathing becomes slower deeper as well.

    works for me.

    it is wierd how this lupus effects us. mine is mainly in the blood. blood flows through the lungs, so lungs are effected also.

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    That was one of my early symptoms as well. It feels like you are trying to breath but something is stopping it from going down. One of the things that we have to remember is that Lupus is disease that causes inflammation in our body and it can happen anywhere. When the inflammation of the passages to the lungs it makes them FEEL like that are not working. Many times they are working fine or will with the right dose of steroids.

    We do have to pay attention to the lungs because things such as pleurisy or other lung issues but those usually have extreme coughing or pain. What you appear to be talking about is just another nasty symptom that many of us get that make doctors look like they have never heard of lupus!
    Mari

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    That was one of my early symptoms as well. It feels like you are trying to breath but something is stopping it from going down. One of the things that we have to remember is that Lupus is disease that causes inflammation in our body and it can happen anywhere. When the inflammation of the passages to the lungs it makes them FEEL like that are not working. Many times they are working fine or will with the right dose of steroids.

    We do have to pay attention to the lungs because things such as pleurisy or other lung issues but those usually have extreme coughing or pain. What you appear to be talking about is just another nasty symptom that many of us get that make doctors look like they have never heard of lupus!
    Mari

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    Ok well I feel a bit better then. He just kind of looked at my like I was crazy and he didn't have any idea what would be causing it so I wasn't sure if it was lupus effecting it, which would make sense but he didn't seem to have any idea what it was or something.. I don't even know. I mean he's a good doctor and he answers the questions I ask and tells me how everything is going and checks all my joints and such so I do feel like he knows at least something of what he's doing. I was just weirder out he didn't have a thought to the breathing thing.

    I just felt like I couldn't get any air. Almost like my lungs weren't inflating or something, even though I was getting oxygen and didn't feel like I was going to pass out or anything so I knew they were working it just didn't feel like they were. It was not a fun sensation. I told him about my legs and arms tingling and he said it was most likely the nerves being affected by it right now.

    Eh I wish there was a clear cut-this is caused by this and this is caused by that so you could know for certain what's going on is lupus or something else crazy. I feel like now every ailment I develope is caused by this but no one knows for sure... Since it varies so much! Laaame....

    On a side note... Has anyOne seen the tickle duck thing at hallmark? I so want it. I was literally sitting there cracking up for 10 minutes tickling this thing in the mall. I'm sure the employees there loved me for it.

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    Never heard of it. Will keep my eyes open!
    Mari

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    I've not seen it either. But, I am going to the mall tomorrow and will make sure to check it out. I could use a good 10 minute laugh

    Peace and Blessings
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    I also have breathing problems and live on inhalers through the day and a steroid one before night, it's like Mari said Lupus causes inflammation and when it's playing up badly with me causes the muscles around my lungs to swell and that's no bonus to the condition.

    I hope your ok and do takecare. Terri x

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    Quote Originally Posted by Toradoradi View Post
    Ok well I feel a bit better then. He just kind of looked at my like I was crazy and he didn't have any idea what would be causing it so I wasn't sure if it was lupus effecting it, which would make sense but he didn't seem to have any idea what it was or something.. I don't even know. I mean he's a good doctor and he answers the questions I ask and tells me how everything is going and checks all my joints and such so I do feel like he knows at least something of what he's doing. I was just weirder out he didn't have a thought to the breathing thing.

    I just felt like I couldn't get any air. Almost like my lungs weren't inflating or something, even though I was getting oxygen and didn't feel like I was going to pass out or anything so I knew they were working it just didn't feel like they were. It was not a fun sensation. I told him about my legs and arms tingling and he said it was most likely the nerves being affected by it right now.

    Eh I wish there was a clear cut-this is caused by this and this is caused by that so you could know for certain what's going on is lupus or something else crazy. I feel like now every ailment I develope is caused by this but no one knows for sure... Since it varies so much! Laaame....

    On a side note... Has anyOne seen the tickle duck thing at hallmark? I so want it. I was literally sitting there cracking up for 10 minutes tickling this thing in the mall. I'm sure the employees there loved me for it.
    LOL My daughter and I saw it! We laughed so hard! Thanks for mentioning it!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    I had the same issue but had a pulmonary embolism. I thought I was having a panic attack until I started getting pain. The pain from a PE is nearly as bad as pleurisy...hope its neither for you.

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