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Thread: Are there Natural ways?

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    Default Are there Natural ways?

    Has anyone found a natural way to treat lupus? I just dislike the thought of giving my daughter different medications... I am new to all of this and trying to inform myself of all possible options. Thanks!

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    I think all of ask this question early on. I never took meds until this so it wasn't natural for me to go on these meds. I wish I had a better answer for you but the answer is no. There are tons of sights out there that say they can cure Lupus with this natural pill or this diet but they are a scam. There really isn't anything that will treat this except the meds we use. Some say a special diet will help it but no two doctors will agree on the same diet. (I had my GP tell me to be vegetarian and my Rhuemy said only natural foods while another doc told me to do atkiins). Basically she needs to eat a healthy diet just as would be instructed to anyone.

    I am sure that others here can tell you what has helped them to not flare as badly but that is different then treating it without meds.
    Mari

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    I have learned the hard way, several times, that the only way to treat this is with the right medicine. I've read so many books about how they were magically symptom free from this or that but my doctor told me I needed to stick to my pills. I was, and still am, the type of person who hates taking medicine and will only take something when I absolutely need it. I thought I could manage all this on my own and stopped taking my pills when I felt better but it doesn't work like that, you just get more sick. Other than some supplements that go along with the right medication there is no natural treatment for this disease. Medication every day sucks but it becomes routine and its what we need to stay healthy.
    "A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard

    Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
    Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.

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    I've took medication from when i was 18 to now at 42 and i can understand your concerns with your daughter being young but sometimes in life there's no other option, i take large amounts in drugs and i know that if i did'nt stick to taking them i'd be in a right mess.

    Like mari said there's only the drugs for Lupus itself that can really help, some people take vitamins and other's go on special food diets for Lupus and i've read that the diet's don't help that much.

    I do hope your able to choose in the best possible way for Kayla when she does see a specialist.

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    i have read a little about our modern drugs.
    i have spoken to my rheumy at length about them.

    basically drugs like plaquinel are desease modifying.
    they cause a chemical reaction with our body.
    they are designed specifically for that.
    no natural substance can do this.

    we use natural substances to supress inflamation or as a base for steroids.
    but to cause a chemical reaction to modify our "out of kilter" immune system, you need a chemical not a herb.
    natural remedies are basically herbal based.

    i hope you can understand what i have written today is another foggy day for me.

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    Well, we have decided to try a gluten free diet for a while to see if that helps at all. We have to wait until June to see the specialist anyway, so we may as well try something! Thanks for all the info everyone!

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Quote Originally Posted by Kayla's Mom View Post
    Has anyone found a natural way to treat lupus? I just dislike the thought of giving my daughter different medications... I am new to all of this and trying to inform myself of all possible options. Thanks!
    To be blunt, and totally honest-

    No, there are no "natural" ways to treat Lupus. I have researched this subject thoroughly, and I can tell you that there are a bunch of charlatans out there who will tell you that this diet, or that diet will "treat" Lupus. It's a lie-pure and simple. There is zero clinical evidence to prove any such claim, and some of the diets that purport to "boost your immune system" can be harmful to a person who's immune system is already out of control. That's not to say that a well balanced diet isn't something we should all strive for, but these so-called natural treatments/cures do absolutely nothing to manage Lupus disease activity.

    Our founder Saysusie's daughter Laurie fell prey to one of these bogus diet treatments, and the results were tragic.
    Here is a link to a recent thread Saysusie posted on this very subject-

    http://forum.wehavelupus.com/showthr...ghlight=banned

    Rob

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    Quote Originally Posted by rob View Post
    To be blunt, and totally honest-

    No, there are no "natural" ways to treat Lupus. I have researched this subject thoroughly, and I can tell you that there are a bunch of charlatans out there who will tell you that this diet, or that diet will "treat" Lupus. It's a lie-pure and simple. There is zero clinical evidence to prove any such claim, and some of the diets that purport to "boost your immune system" can be harmful to a person who's immune system is already out of control. That's not to say that a well balanced diet isn't something we should all strive for, but these so-called natural treatments/cures do absolutely nothing to manage Lupus disease activity.

    Our founder Saysusie's daughter Laurie fell prey to one of these bogus diet treatments, and the results were tragic.
    Here is a link to a recent thread Saysusie posted on this very subject-

    http://forum.wehavelupus.com/showthr...ghlight=banned

    Rob
    I Just said it in another post but I want to say it here as well. You, Rob, are my hero! Thank you for saying what I was thinking. I too have a daughter that is showing symptoms of this disease but, as of now, doesn't have it. They have started her on 1 medicine that she takes at night to help with her chronic pain and she goes to a rhuemy every 6 months and her regular doctor every 3. To deny her a medicine for this disease, in my opinion, would simply be saying that I don't care how much it progresses. I live with this every day and I know the meds can be difficult but without them our body begins to attack itself and we risk death. Pure and simple we risk death.

    I am not going to risk my daughter dying because the meds are hard to take. Yes we try to eat healthier but it is in an attempt to HELP the meds keep our bodies working not in an attempt to skip the meds that allow us to keep on living. I don't mean to sound harsh but this is a very important topic to me.
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    NEVER did I say I wasn't going to give her meds. Please re-read what I said. I said we are going to "try" a healthy diet until we see the specialist in June. I would NEVER jeopardize my daughters health by not giving her meds and I am offended by your post. This is an important topic to me as well. Please don't attack me without reading what I wrote fully. I thought this was a supportive site?

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    I am sorry to offend you Kayla's mom. Very seldom does a topic come up that we feel so strong about and maybe we misread what you were saying. If that is what happened I am very sorry. So often people come here with (or elsewhere) stating that there is a natural way or that there is a cure and we know people that have been hurt from that. Dealing with my own daughter I know I would give anything for a natural cure of somekind. Hell (yes, I cussed Rob) I would give anything for ANY cure if it would keep her from ever having to deal with this. I know that is how you feel as well. No one thought you would do ANYTHING to cause your daughter harm intentionally, it is just that so many fall prey to those that promise things and people that care about themselves or a family member get sucked in.

    I think we tend to get a bit harsh on this subject because we have learned that we have to be as strong about it as the people selling the "natural" ways. As long as you are going to listen to a doctor and simply add in other things then I promise to not get so harsh on this one. I am seldom harsh but this one fires me up. Can we make up on this one?
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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