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Thread: How i got on with the Cafeter Test (As other member's have had simular affects)

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    Lightbulb How i got on with the Cafeter Test (As other member's have had simular affects)

    I got at the hospital yesterday for 9-30am sister nicky tested my urine first for infection that was clear, she then had me empty my bladder to see what pressure it came out at.
    I then lay on the bed while two camera's was inserted into my cervix, i had to hold my stomach as they rub against your nervous system inside and then she inserted the other up my anul which did hurt.
    She then started filling my bladder with liquid and asked me to alert her when i felt it filling my bladder for a wee and then when i was ready to go to the toilet and when i was desperate and all the time she was watching with the camera's.
    When she'd finished i had to empty my bladder again and she removed the tubes.

    She told me my bladder is not big enough for the amount of urine i'm losing and that's why i lose bits of urine through the day and i've got an appointment booked to see the Gyno specialist in June to be started on another lot of tablets to control my urine from filling my bladder before i need the toilet and to help stop any losing of urine otherwise.

    Yesterday i suffered with lose bowels after it and then stomach pain, as the tubes rub against the nerves inside you.

    (I've added this thread also due to reading some posts, where female member's have had the same problem)
    Last edited by Peridot20_Gem; 03-19-2011 at 08:57 AM.

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    magistramarla (03-18-2011)

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    Hi Terri,
    I hope that you are feeling better after going through all of that.
    I've read about those tests. They do that to check for interstitial cystitis, which I've read is pretty common among the ladies over at the Sjogren's forum.
    As you know, I have those problems, too. By this time, I know every public loo on the Monterey Peninsula! I can't go very far at all without stopping to go!
    Take care of yourself, and let me know how those meds work for you.
    Hugs,
    Marla

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    Hi Terri,
    Bless your heart! Sounds like they have ran you through the ringer on those test, sending
    big hug's you feel better soon, i havent had those test ran but i cant get very far away from
    the loo either, and it's so agervateing all through the day back and forth to the loo every 15 or 20 minuits some times i make it and some thimes i dont. Or if i have visitors of family
    that may stay over 30 min i have to excuse my self after i hold it long as i can from being
    imbarrased from them asking me why im trotting back & forth to the loo!
    It caused me to dehydrate 3 times last year ended up in er with drip dr's just said neurospastic bladder from sjogrens or lupus flairing causeing my bladder to spasam.
    Hopeing you feel better soon after all those test, and try to rest up some,
    Lot's of love to you ~Diane~
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

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    Quote Originally Posted by magistramarla View Post
    Hi Terri,
    I hope that you are feeling better after going through all of that.
    I've read about those tests. They do that to check for interstitial cystitis, which I've read is pretty common among the ladies over at the Sjogren's forum.
    As you know, I have those problems, too. By this time, I know every public loo on the Monterey Peninsula! I can't go very far at all without stopping to go!
    Take care of yourself, and let me know how those meds work for you.
    Hugs,
    Marla
    Hello Marla,
    I was ever so worried the day before, as i've heard a few stories off others. I'm glad i've got no infection but the cafeter test you can get a slight infection so i've just got to watch now, i hope not anyway.
    Marla i feel sorry for you mate knowing every public toilet because it annoys me but i hardly step out the door now, my hubby does a great deal more.
    Marla i'll let you know if they work plus the name if they're any good incase they can help you also but i'm not due to see the gyno till June.

    Hugs & kisses to you marla xxx

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    Quote Originally Posted by ~LUVMYFLOWERS~ View Post
    Hi Terri,
    Bless your heart! Sounds like they have ran you through the ringer on those test, sending
    big hug's you feel better soon, i havent had those test ran but i cant get very far away from
    the loo either, and it's so agervateing all through the day back and forth to the loo every 15 or 20 minuits some times i make it and some thimes i dont. Or if i have visitors of family
    that may stay over 30 min i have to excuse my self after i hold it long as i can from being
    imbarrased from them asking me why im trotting back & forth to the loo!
    It caused me to dehydrate 3 times last year ended up in er with drip dr's just said neurospastic bladder from sjogrens or lupus flairing causeing my bladder to spasam.
    Hopeing you feel better soon after all those test, and try to rest up some,
    Lot's of love to you ~Diane~
    Diane,
    I'm visiting the loo as much as yourself about every 20mins and teatime it's quicker, i forgot to add that i told her i constantley drunk tea and one coffee a day and she said if you drink decaffenated apparentley it slows the process of the bladder down.

    Diane you should'nt worry about visitor's or what they think, your carrying a bad illness mate and if you need the loo just go. I've had bad dehydation for years and it is from the sjogrens but the systemic lupus with me does'nt help as that GP told me who stood in for my doctor, now you would have loved chatting with him, he did half know his job and everything involved.

    Well i'm abit tied out now spent some of the day in the gardening, i've covered myself up well and still feel baked to death.

    Your takecare mate & all my love to you. xxxxxxxxx

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    While I don't wish any of this on anyone, it is comforting to hear that others are going through the same things. I swear I spend more time in the bathroom than in any other room in the house! I've also found that I have to eat very small portions as meals or I get so bloated that I feel like I have to urinate all the time. I'm up at least three times a night and that's a very good night for me. Considering I have Sjogrens, you would think I'd get a little relief in the potty department! And apparently, frothy (or foam in the urine) means I'm passing excess protein and that only started a month or so ago. Talk about a progressive disease!

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    Hi Susan,
    It can be an affect from the sjogrens but also the Lupus i've read and it is a constant nightmare visiting the loo, the only break i have is when i'm knocked out for the night but i am desperate as soon as i wake.
    I have that frothy foam also and it's not always in my urine, i mentioned it to the sister besides washing myself i'm wipping myself with unsented wet wipes and she told me to try and break the habit abit as the white foamy discharge is actually good protein being lost from our systems due to the lupus and she said the more you wipe yourself besides washing it will cause it to come from your system more.

    Susan this started on me last year, we've most likely got more to come mate and i'll definitley do those pic's tomorrow sorry. xxxxx

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