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Thread: Ankylosing Spondylitis?

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    Default Ankylosing Spondylitis?

    Does anyone have any experience with this condition? I've been having lower back and neck pain (in addition to SLE) for the past few years. I went to the doctor today and learned about AS. If you have experience with AS, what was your pain like? How did it start?

    Thanks for you help!

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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Hi SMP03; :lol:
    I had never heard of Ankylosing Spondylitis (AS)!! Here is what I've been able to find out, however:
    AS is the main rheumatic disease in a group of conditions called the "Spondyloarthropathies (SpA)" and they are referred to as "Spondylitis". AS primarily affects the mobility of the spine. It RARELY affects the entire spine. It may sometimes affect other areas of the body, such as the eyes, small joints of the hands and small joints of the feet. The symptoms are generally pain and stiffness in the affected areas. AS is arthritic, in nature. But, unlike many rheumatic diseases, it affects young adults and generally begins before the age of 35. There is no cure yet, but there is treatment.
    Like Lupus, diagnosis of AS can sometimes take years :cry: . It is suggested that, once the pain is under control, daily exercise be an important part of your treatment.
    I found a good web-site about this condition that has information about treatments, exercises, men's issues, women's issues etc.
    http://www.spondylitis.org
    Best of Luck....If you find any good information, please share it with us!!
    Peace and Blessings
    Saysusie

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    Hi, I hadn't heard of it either, but saw a brochure about it in my rheumy's office, so there must be more peole out there dealing wiht it. Maybe some others out there will give you some more feedback!

    Good Luck,

    Missy

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    I was tested for it(i dont have it)---they do that HLA-B27 test---was yours positive?.....I heard it tens to be a much milder dz in females.....actually a colleague from work has it (female in her 30s) and shes totally active and just had a kid, she does c/o of intermitent flares...are you sure you have both lupus and AS? they can mimic each other.....AS tends to run in familes- more pronounced in men


    good luck!

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