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Thread: NMO-lgG test for Devic's disease showed Negative for antibodie's!

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    Smile NMO-lgG test for Devic's disease showed Negative for antibodie's!

    Hi all,
    Hope you all are as well as can be. Got my result's on the nmo -lgG test
    my neurologist specialist ran just to make sure i didnt have this other rare
    disease that the other dr's may have missed, and thank god it was negative!
    It sure was a relief to hear of one test being negative in all that has been going wrong here lately! I had to ask the nurse 3 times to make sure i was hearing her correctly.
    Got my bloods drawed this last fri mar 11th to make sure the imuran is not droping my counts to low also demanded a chest x-ray from my local
    rummy that is not to smart with the lupus,sjogrens ,etc. As i have been haveing new very short of breath and short wended for just a very short distance, to make sure sjogrens or something else is not going on , trying to
    catch it in time, becuse she just denies lupus or sjogrens can cause those kinds of problems? Even my new heart issuse with endocarditis, she said
    OH! Lot's of people have regurgation of the mitrovalve and the triscupsid valve
    I told her i jus had a echocardiograham of my heart 8 month's ago and it was
    perfectly normal and healthy? It is usleless to argue with her so ill
    wait till i see my cardiologist to see how bad it is and hope for the best that it hasent done any dammage as to where i will need surgery.
    I go to see my rumatologist specialils at the university the 31st of march
    and will surley get my heart dr' there that also specialises in lupus and sjogrens also, am so through with these local praticeing rumatologist here!

    She also put me on the Boniva once a month as she ask why i hadent done
    my reclasp infusion yet for my bones due to the predisone makeing your
    bones prone to fracture, I told her i was still to sick with my flair and weak to do the infusion yet as it makes you run a 103 to 104 fever for 5 days and severe flu type symptoms, so she put me on the once a month boniva to
    help me from bone breakage for now and a new stomach pill Dexilant
    to help with my refulx as the boniva will aggervate it.
    So I took my first boniva and have had kinda mild flu type symptoms, and severe dirrear so far , maby it wont last long.
    LOL!!!!!!!!!! It dose never seem to end!!
    Will keep you all updated sure hope all this slows down a bit for me,
    Lot's of love to you all, And wishing you all a Great and pain free weekend,

    ~Diane~
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

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    good to hear the good news.
    sorry the rest was not as positive.

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    Glad to know something went the way you wanted it! We need the good news
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Glad to hear your lab work came back negative!! (<:

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    Thank you Colleenc,
    It was surley a breath of fresh air and a great relief to get some good
    new's !!!! Hope you have a great day!!! ~Diane~
    Quote Originally Posted by Colleenc View Post
    Glad to hear your lab work came back negative!! (<:
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

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    Hello Diane,
    Sorry i have'nt answered earlier mate but that's terrific news for once and that's one less worry now.
    When do you get your blood results diane? that imuran does cause you some problems which you could do without.

    Oh i do hope your diarrhea as eased off you abit diane off that boniva, as your thin enough as it is without losing more weight, that's my dreaded subject if that starts with me with the plaqueni, as it will be god help me.

    I really hope you've been abit better today mate but that's lovely news otherwise.

    Thinking of you always dear friend ((Hugs & Kisses)) Terri xxxxxxxxx

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    Thank's Mari, Sure was a bit of sunshine in the mist of all the darkness here
    lately! I surley needed a little good new's to help lift me back up again.
    Hope you are doing ok, And wishing you a great day Mari!
    ~Diane~
    Quote Originally Posted by tgal View Post
    Glad to know something went the way you wanted it! We need the good news
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

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    Thank's very much, hope you have a great day!!!!!
    ~diane~
    Quote Originally Posted by steve.bryce View Post
    good to hear the good news.
    sorry the rest was not as positive.
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

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