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Thread: Under observation for SLE - Questions

  1. #11
    Join Date
    Feb 2011
    Blog Entries
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    I think it comes down to having a doctor that knows about Lupus I don't think alot of them really understand everything that goes along with lupus not just positive bloodwork hell I went years with neg results but had lupus we are all different so I hope that you get a good understanding Doc. I was told that with the 11 criteria aleast one most be a positive blood result rether it is ANA DS-DNA or what ever but one most include the bloodwork I don't know if that is still how it goes but when I called the Lupus fondation they told me the same thing. So Good Luck

    Last edited by lovehubby; 03-23-2011 at 06:49 PM.

  2. #12
    Join Date
    Jan 2010
    Houston, Texas
    Thanked 1,757 Times in 1,220 Posts


    There is a small group that has ANA negative Lupus however it is a small amount. I think where the doctors mess up is that they want all the symptoms at once. It doesn't have to be that and too many are lost because of it. Lupus is diagnosed looking at cumulative symptoms. You can have rashes at one time and the next time no rashes but mouth ulcers and a positive ANA. You still have to count the rashes even if they are not there now. If your next set of blood work comes back with negative ANA you don't forget that it was positive. You add them ALL together to get the diagnosis. Even some of the doctors that are on the Lupus Foundations list don't understand that and that is just sad!

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~

  3. #13
    Join Date
    Feb 2011
    Thanked 366 Times in 316 Posts


    Hi Bunny,

    How did your tests go and how you feeling in general please keep we updated.

    ~Hugs Terri ~xxx

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