I was diagnosed with Lupus, Fibromyalgia, Glaucoma, Orthopaedic issues from childhood that went undiagnosed until adulthood that has caused leg, back and hip problems and a Chiari Malformation. I am on Prednisone, Oxycontin, Percocet, Soma and Valium and I still can't take care of my family and my house I am in so much pain half the time. I have tired so a many things and nothing is working. I have 3 special needs kids and my boyfriend might have MS. If that isn't enough, my sister has Leukemia and my mother has breast cancer so needless to say things I have to do everything myself and I am getting so scared. I have tried praying, imagery, frequent breaks, physical therapy, counseling, crafts, raw food diets, supplements, all kinds of tests and medications, wrote to specialists and talk shows. I am at wits end I just don't know what to do anymore. Any suggestions?
Welcome back! I see you joined here a few years ago but are a new poster now. So welcome as well!
I know you have a lot going on and please know that what I am about to say is not meant to sound blase. Have you tried just breathing? There are several breathing techniques specifically used to help reduce stress and calm the body. I can see that you clearly have a lot of personal and outside stress going on and you obviously know you need some sort of outlet to manage it. Maybe you just need a combination of things like breathing techniques + praying + counseling + exercise to helo you with that stress. Obviously it won't make all your problems go away, but it might just make them more manageable.
As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.
I am so sorry to hear that you are dealing with so many stressful situations at the same time. It must be extremely frustrating to feel that you are at wits end with no relief or help in sight.
One of the things that you may find helpful is being able to talk with others who completely understand you and who do not judge you. While we cannot offer you any physical assistance, we can give you support, comfort, understanding, advice, and a safe place to unburden yourself.
Again.......Welcome and I hope that you are able to find some physical and emotional relief.
Peace and Blessings
Look For The Good and Praise It!
Hello Reckerdt. I am so glad that you decided to post! I have to agree with Susie on this. I am a firm believer that bottling things up causes more stress (which for us leads to pain and illness) than anything else. We can't fix it for you but we can and will help you through this by being a shoulder to cry, an outlet for anger or simply be a place where people understand.
The pain is often times horrible but for me finding WHL helped that because I had finally found a place where people understood that I was really sick and not lazy or crazy or whatever. Give it a shot. What can it hurt.
PS We are really glad to have you join our family
Success is not final, failure is not fatal: it is the courage to continue that counts.
I am a newby but contact your local council. They can offer you quite a bit of assistance. I get a house cleaner once a fortnight, they organised making my shower safer and more user friendly, got me a physio (via Dr). I can't remember what else, I just remember they really helped me at minimal cost. I think my cleaner costs me $3or $4 for 1 1/2 hrs. Hopes this helps.
God Bless, Lena
Hi reckerdt, I'm glad you posted. You're going through too much to go through it alone. This group is wonderful and a valuable venue to let it all out with people that care and understand.
I am a Newbie also, so i really dont know much about Lupus myself and have no advice except that my heart and prayers go out to you and your family. Your little ones are beautiful . There seems to be a lot of good people that care on this board. May God bless and be with you.
Hi reckerdt, I sure can relate with you. I too have Lupus and severe Fibromyalgia and the only time I ever get relief is whenever I am asleep. Other then that, 24/7 severe pain. I just want to mainly say, thank you, for sharing and positive thoughts going your way!
I really do sympathize with you mate the pain is 24/7 and if it eases in one place it shoots to another and my medication does knock me out but you can guarentee come 5 or 6 am i'm being woken with muscle spasms lately.
I hope your abit less pain free today HUGS Terri xxx
Last edited by Peridot20_Gem; 05-13-2011 at 07:12 AM.
Nice to have you back with us but so sorry about your circumstances, my god you have got your hands full of worry and concern.
I was like you had things for years but never diagnosed till adultness and it does get so annoying, it's neglect really bad when it could have just been a few more bloods to be took.
I know your doing alot but all this stress with only make your symptoms alot worse because by your typing your sounding stressed out to the full and your condition's thrieve on it and you'll feel much worse.
I know it's hard for me to say but you do need out side help and if that's possible where you live i would definitely look into it.
All my thought's are with you and wishing you the very best and your family. Terri xxxxx