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Thread: Got a call out of the blue to go do an echocardiogram for splinter hemorrhages

  1. #11
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    Thank you Mari!! You are alway's in my thought's also. I hope you have a great and
    Pain Free weekend!! Load's of love to you!! ~Diane~
    Quote Originally Posted by tgal View Post
    I am so glad that you finally have someone that knows what they are doing! Now that they acknowledge what you have they can begin giving your the correct meds. Please keep me posted! I will be thinking of you!
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

  2. #12
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    Hello Diane,
    My god mate you have been going through alot while i've not been on and i do hope to god it's not MS because i know several people with it and it is bad and very hard to live with.
    It really looks like they going to town on you now to really find out and about time as well, hows your medication now and i am sorry to hear you in such a worse state and i've been thinking a great deal about you while not on but i was unable to do anything and i do really apologise.

    Love you dearly well you know that already and my thought's are always with you mate.

    ((Hugs & kisses to you always)) xxxxxxxxxxx

  3. #13
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    Hope you all are doing good today, Giveing you all an update on the call i got yesterday on
    the result's on my emergency echocardiograham test, From my TOTALY INCOMPETENT
    RHUMATOLOGIST, That is supose to be takeing orders from my rummy specialist at the teaching
    university. Not good!!!! She got her nurse to call me with the results becuse she know's it
    is her mistake for not listening and checking on what she should of.

    The nurse said my Mitroal Valve and my Tricuspid valve in my heart is dammaged showing
    blood regurgation going back into my heart that should be going out!
    I Totaly freaked out heart started going ninty miles an hour had to take a whole xanax and
    told the nurse to wait a minuint & let me get a paper & pen to write it down. Mind you I just had this same test not even a year ago & my heart was fine!
    So i wrote all that down and then ask nurse was it Endocarditis, was it caused from sle or sjogren's or what, That ive been telling the rummy for the last 5 months something was wrong &
    something else was going on becuse of the ongoing weight loss severe fatigue not getting better but worse, very short of breath, legs not working well & very weak, chills, fever &
    would be out of breath just walking to my bathroom.
    The nurse said WELL YOU JUST HAVE SO MANY SYMPTOMS GOING ON AT ONE TIME, Dr. harris
    just couldent figure it out! I said OMG!!! that's why i went to a rumatologist becuse they are
    supose to know autoammuine diseases & complications of them. HELLO! The nurse said
    well i dont know if it's endocarditis or if lupus caused it or sjorgrens caused it, And the report
    says it is mild and i have you an appt with a cardilogist for April 8th and he will have to look at your echo and tell you what caused it and and what needs to be done. Then the nurse go's to
    saying well at least now you have got all these dr's working so hard togeather on you and to get it all figured out now and hopefully get you felling better! I Told her ive been going through this for almost 9 years now & had been seeing this rummy for the past 3 yr's and have gone down hill since till she finaly told me i was so complicated so just didnot know what else to do cause she wanted all blood work to tell her what autoammuine diseases i had, So she sent me to the university where she should of admited years ago and sent me then instead of slowley killing me.
    So thats why im shotr of breath it says when the blood backs up back in the heart it pushes up in the lung's. This is a very dangerous heart problem she has caused me, So i just hope & pray
    it's not had time to get very bad at this point. Just do not think i can handel any more envasive
    test or the thought of heart surgery i realy just dont know where i can draw any more stregith
    from at this time. This has pulled me down so far, even a deep breath is not working.

    And im still waiteing on my other test my new neurologist took last week to see if i have
    neuromyelitis optica the test was nmo-lgL devic's disease. Trying to deal with my heart prob and i cringe every time my cell rings waiting on the other test results is just about more than i can bear at this time. So i go to see my rummy specialist the 31st this month at the university i Will get him to get me a good cardiologist there at the university, no more local dr's for me.

    Lot's of love to all , will give update when i hear on devics test results'
    Thanks for being here for me!!!!!!!!!!!!!! ~ Diane~
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

  4. #14
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    Hello Diane,
    I just don't know what to say mate except that i'm really sorry to hear the bad news with everything else going on and i bet it as shocked your hubby besides yourself.
    I'm just disgusted with since you've been a member you've gone back and forth with tests here and there and it's took till now to pick it up.

    You don't think they're looking down the line of an heart op when you see the specialist and fancy getting a nurse to tell you such bad news, it really explains the tiedness you've been having more of plus breathlessness and i wonder if that's what's affecting you weight.

    Diane i'm so worried for you mate and i really do hope they can help you quickly but pain free as possible, i'm off to tell ste because i just can't take it in with what they've found.

    Thinking of you so much mate & all our love to you from this end ((Hugs & xxxxxxxxxxxxx's)) Diane

    Your dear friend Terri xxxxxxxxx

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