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Thread: Cant Get/Stay Warm

  1. #1
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    Exclamation Cant Get/Stay Warm

    DH and I bought a newly constructed home last summer so I know it's not drafty and the heat works well, etc.

    In our rental home, we would keep the thermostat at 64 in the winter to keep heating costs down and we'd all wear warm sweats and thick slippers. We'd keep a throw handy for TV watching and nobody had an issue with it.

    Not this year. I've got the thermostat at 72, the thick sweats and slippers, with blankets. aren't even cutting it--my hands and feet are like blocks of ice. Oh, and don't forget my cold puppy nose. My fingernails are now milky white. I don't have any sores on my fingers, which I understand is common with advanced cases of Raynaud's.

    I've had (mild) Raynaud's for a long time, but never have I been this cold.

    I had thyroid testing done last week (TSH, T3/T4 Uptake and Free T4). All were WNL, according to the lab ranges. With the sudden hair loss and the other symptoms I've had, I'm absolutely convinced my thyroid is out of whack. My rheumy recently said my hair loss is probably due to another AI disease or a circulatory problem.

    What else could be making it so hard to keep warm? Staying in bed or a hot bath all day isn't an option. BTW my oral temp runs 97.9.

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    It could still be your thyroid; have you seen an endocrenologist? Also if you have lower blood pressure with the bad cirrculation that could make you cold. I used to set the thermostat on 78; that and stay warm. Otherwise I'm under a blanket and I don't have Raynaud's. Once again I am an example not a fact.
    Please see an endo if you haven't

    hugs. Nonna

    don't know wher the smilie came from..... Not me

    fixed it
    Last edited by Nonna; 02-27-2011 at 04:56 AM.

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    I have a problem with cold too. Even when it is warm outside i can still have purple fingers in my house. My husband does not understand any of this and in the summer i have to go outside to get warm because he has the air on at 68 and it is freezing. When i am not in a flare my temps run in the 97 degree ranges. Bonita

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    Have you been changing up on any of your meds? I had tappered down and gotten off of cymbalta and had problems with always being cold to the point of shaking violently trying to warm up. The doc started me back on cymbalta and now I do not have a problem getting cold. He said it was depresion possibly that was causing the problems, imagine any of us having a bit of depression, I also was losing weight and did not have an appetite and bouts of anxiety, bad. Hope this helps someway. Jim.
    Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our tribulations, that we may be able to comfort those who are in any trouble, with the comfort wich we ourselves are comforted by God. 2 Corinthians 1:3

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    I have that problem too at times. Try warming your socks in the microwave for a minute or two or in the dryer. It helps sooooo much.
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



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    lolol SandyR... I've even tied a "bed buddy" (bag of rice) around my waist before after heating it in the microwave. Right now, I'm wearing my "hoody" zipper sweatshirt, and still *freezing*!

    But seriously BonusMom, I can't find the article now, but it's somewhere around here, where there's some talk that the "baseline" of a lot of those thyroid blood tests being "off the mark", so to speak. Some folks need more, some need less. In other words, there's no real "normal". The "best" way to diagnose thyroid issues is with the basal body temperature. Like Nonna suggests, see an endocrynologist, but one that tests that way also.
    "There but for the grace of God, go I."
    "... His mercy endureth for ever."

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    When I get cold to the bone it helps to take a hot bath. Showers make me colder but a very warm bath seems to last awhile. Now all you need is to have someone draw you a bubble bath several times a day and light candles and put on soft music. Lupus would be easier to handle if we were rich and had butlers to do those things for us. LOL

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    Quote Originally Posted by jmail View Post
    lolol SandyR... I've even tied a "bed buddy" (bag of rice) around my waist before after heating it in the microwave. Right now, I'm wearing my "hoody" zipper sweatshirt, and still *freezing*!

    But seriously BonusMom, I can't find the article now, but it's somewhere around here, where there's some talk that the "baseline" of a lot of those thyroid blood tests being "off the mark", so to speak. Some folks need more, some need less. In other words, there's no real "normal". The "best" way to diagnose thyroid issues is with the basal body temperature. Like Nonna suggests, see an endocrynologist, but one that tests that way also.
    hmmmm....a bag of rice, huh? I do think that's on sale at my local grocer right now. Perhaps I'll get the 10lb bag and have a good warm snuggle with it. I was just thinking this weekend that I wish they made snuggies and blankets with the UGG material. When I wear my uggs I feel much warmer. Our Aussie friends can correct me if I'm wrong but I had read a while back that Uggs were originally meant to be warm house slippers.

    I think the thread you are referring to is one I posted a while back - Nonna, you know the one b/c you were the one to point out that the range isn't set in stone for everyone. I can't even remember the name of my own thread right now, but I remember that Nonna taught me something new on it. It's in the symptoms page. I think.
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



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    I've read and re-read your awesome thread on thyroid stuff and gone to your links, Sandy. Thanks for posting the info., it's been very helpful. Both the primary doc and my GI nurse practitioner have said that the thyroid labs look good, although I posted the info on one of the sites you mention, Sandy, and I was told that the free T4 was low. How does one get a referral to an endocrinologist if their labs look "normal" to the gatekeeper i.e. their PCP?

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    are you sure you need a referral? I know I have an open-gated plan (PPO) an can just go see who I want when I want without a referral. I pay more for this luxury but to me it's worth not having to jump through hoops to see a specialist. If you do and the PCP won't write you a referral even after you ask I would call the OBGYN and ask them to refer you or call the insurance company and explain that you have Lupus and a thyroid issue and are concerned about your thyroid but your PCP won't listen to you after you requested to be checked out by an endo. If your insurance company has a patient nurse coordinator line that would be where I would call first. Also, have you been given a copy of these good looking labs? Have they explained exactly which tests they ran? Have you seen what the labs say personally? I've had labs come back "normal" that were really within a point or two of "abnormal" and would be considered in the extrmely high or low end of the normal range. If that describes you then you might want to ask them to re-run the labs to see if there is a change.

    what is "normal" anyway? it just references the set of people who fall within the parameters of certain criteria for any given measure. Just because we might show up as normal doesn't mean we are the same and I wish the drs understood this. By definition of the way AI diseases work normal is abnormal for us and we shouldn't be discounted because our numbers look good. I wish I could get my doctors to understand that all normal is in a blood test is a range of averages. It's like a physics test. I might pass it and fall in the "good" range but that doesn't mean the results relfected my true capabilities to perform as well the next time. I might have just had a good day.
    Last edited by SandyR; 03-01-2011 at 02:17 PM. Reason: normal rant
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



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