First thing I want you to do is take a deep breath. You have been moving so fast and getting so sick that it is overwhelming. I know when you are in a flare things get so bad that that you do worry about not making it and I am not going to lie and say it doesn't happen but it is more rare then it use to be. It is GOOD news that they are accepting the AI diagnosis because now they will begin to be more proactive and less reactionary as far as your illnesses go. I know that it is hard to do but it will only make things worse if you toss in the worry over dieing. This is a big "don't borrow trouble" moment. You have posted here over and over about how you knew what was wrong and that they didn't listen. You were scared that if someone didn't listen soon you were just going to get worse and worse. Guess what? They are FINALLY listening! Yes, it got bad but you now have their attention and you won't be ignored anymore. Now you can start on the path to managing a disease instead of letting it ravage you.
You will be in my thoughts and yes, we will all get through this together! We love ya and will be waiting for more details