Parts of your story could have been written by me! Lost job even though I had never had anything but glowing reviews. Denied long term disability that I had been paying for 8 years. etc. etc. I completely understand what you went through. I will even add that I blame the Lupus being "turned on" because of chemicals that were leaking into the office for several years. Now I am waiting for the SS Andministration to approve my disability which we have been fighting for since early ast year. As much as I hated how it went down and I need money and insurance in order to live, I can't imagine having to work now. There is just no way I could work everyday right now.
Originally Posted by CanadianGal
OK, off to the doctor for me. Hugs to all of you
Success is not final, failure is not fatal: it is the courage to continue that counts.
Thanks for the reply and support. It feels so good to hear that someone else understands and can relate i.e. broken symptoms record......Sorry to hear about the job situation. I think it is amazing that you sued-congratulations. I will keep my fingers crossed about the second litigation-assholes! Hopefully that will work out and you won't have to worry about $ so much. So stressful. Perhaps then you could work part-time?
I think that my gum pain might be related to sinus pressure/inflammation. Not sure though.
A week to go before my rheumy appt. Any suggestions? I'm really nervous. I feel like I have so much riding on this appt. I'm due to go back to work the day after the appt. (9th). I'm feeling better these days-probably because I'm not working, less stressed, and can rest when I need to. Also, a lot of the symptoms seem to be going away-so I'm wondering if this flare is finally almost done and I'm going into remission. Who knows. I still have sore joints, and chest pain. Do you bring up any phlegm/cough? How did you get diagnosed with inflammation of lungs/heart?
Hope you are having a good day so far,
I think you must be a long lost twin sister because you just described all of my symptoms pretty well.
"...I have cankers in there-man they hurt. My left eye and my throat have been really bothering me too...I also have to go for an ECG/chest x-ray. I've been having chest pain-a heaviness in my chest-that feels a bit better when I sit up/stand up. Still with the joint pain, flu feeling, sore glands, fatigue, night sweats, abdominal pain, hives, crusty eyes in the morning, sinus headaches-sore gumline, IBS" All of that could have been written by me and might have been pulled from my thoughts word for word. Just sprinkle in a little Type 2 Diabetes and Sarcoidosis and Psoriasis and auburn hair and we might even look like twins too! I'm sorry to hear that you are going through all this. I would advise that you ask your doctor to also run your ACE levels - to test for Sarcoidosis - because it mimics Lupus and physically looks very very similar.
As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.
Hope the day went by fast and you are now at home relaxing. Do you take any medication?
Good to hear from you. I've read a lot of your posts..Do you have an SLE diagnosis? I'm off to google sarcoidosis. Hope all is well.
Hows your health now mate and sorry i've not been intouch for abit. Refering mysef still the same mate but the plaquenil is starting to work but i am dreading next week got to have a caffeter done, two tubes through my cervix and another up my back passage feeding fluid through for the other two to see what's going on, this Lupus and it's symptoms as got alot to answer to ahhhhhhhh. lol
Luv Terri xxx
Oh Terri, that doesn't sound like much fun. Why do they have to do this procedure? Glad to hear that the plaquenil is starting to kick in..I had my appt. with rheumy yesterday. He was rushed and not very methodical, I sure hope he knows what the hell he is doing.He sent me for some tests: ESR, CRP, AST, ANA, anti ds DNA, ANCA, B12 folate, iron, ferritin, TIBS, CBC, creatinine, ck, alt and urine. Does that sound about right? Fingers crossed that he can figure this out. He mentionned Lupus and connective tissue disease as well as urticarial vasculitis and pernicious anemia.....Once again it's the waiting game now.
Try not to think about the test you have to have done-I know-easier said than done.
take it easy toots.
Originally Posted by Peridot20_Gem
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They're doing that procedure due to me losing loads of blood and when niot losing the blood i have small amounts of urine pass at times and it can be different things but it can also be the cause of to much protein in the urine from Lupus but god knows where the results will be going until i ask at the hospital.
Wendy i don't know about your Rheumo specialist mate but i don't rate mine, just took a quick look at my background and like yourself 12 bloods took in the names you've mentioned but some i don't understand, i just like to see it in black and white what i have and it was when he sent a couple of letters to my GP who let me have a copy.
Pernicious anemia is megolablastic anemia which i have, they gave me zinc tablets and they was'nt enough so i'm having B12 Jabs now for life every 3mths, it makes you lifeless.
If your ANA comes in high then you most likely have Lupus in your system, my ANA & ENA came in high and the rheumo would'nt say if i had it or the doctor in the day unit but i've got a great dermo specialist for my raynauds and he told me i had it but when i see them in august they want to do a DNA test on me, god knows what else they want to confirm me with.
Thanks for support coming next week mate & rest yourself also.
I hope your not suffering to much today mate and if your like me feel ready for the knackers yard [excuse the expression].
The quicker you get your results you'll know better with what your dealing with.
Love Terri xxx