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Thread: New symptoms

  1. #11
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    Quote Originally Posted by CanadianGal View Post
    Hi Wendy,

    Sorry to hear your not so well. I can relate to much of your pain. Chest--mine is the inflammation of the lining around my heart and lungs. Very painful! I have the normal laundry list of lupus symptoms that most of us have, fatigue, fever, joint/muscle pain, canker sores, brain fog, etc... It has also effected my eyes (scleritis). I pray that you don't get this! About the only up side to having scleritis is that it is physically something that people can see (not so pretty though). I don't know how many times people have said "Well you look great" when I feel like crap. They don't really get it if its not happening to them. I know what you mean when you said you feel ridiculous talking about all your symptoms. I know I get sick of listing them all, I can only imagine what healthy people are thinking when I start the long list--it's like a broken record.

    I don't have any kids but working was definitely hard. When I left on sick leave and wasn't able to return, like Mari, they terminated my employment. After I worked there almost 20 years with a sparkling clean record and tons of recommendations and accolades.

    I sued. It took two years and a tremendous toll on my health and finances, but I won. It was an extremely difficult time that I don't wish on anyone. Right now I'm unemployed (couldn't return to the old employer--they were barbaric in they way they treated me). I did have a long-term disability plan with the old employer but because of the nasty things they said about me (which were total lies) I was denied. Needless to say, I sued. It's still in litigation.

    In the meantime, my doctor has just filled out all the CPP benefits for me. So hopefully I start getting some kind of paycheque. It's pretty hard to look for work when you feel like crap and how exactly do you tell an employer that you'll need extra sick days and you won't be able to give any notice as to when you'll need them. Yeah, I think you'll be first on the hiring list--NOT. I really don't see myself being able to go back to work anytime soon. It's a negative loop--you feel bad because your not well enough to work, extra stress piles on because of lack of income, you feel worse because of the extra stress. Like Mari said, "when I finally allowed myself to accept that this isn't my fault I began to feel much better emotionally". That's what we all have to do. Just let it go. (I'm aware that that is much easier said than done at times.)

    Interesting what you said about the sore gums. I had a episode last month where I thought I had an abscessed tooth. I went to the dentist. (I had had an abscessed tooth about twelve years ago and it was the same kind of pain.) They couldn't find an abscess but the tooth had died. They did a root canal and I had all the rest of my teeth checked. About two weeks later I had the same pain on the other side of my mouth. By then I thought it might be related to SLE so I didn't go back to the dentist. The pain lasted three days and is now gone and hasn't returned--knock on wood. I started to search the internet for SLE and related dental pain and it seems to be pretty common. Does anyone else experience this?

    Anyways, I should stop rambling on here. Hope your feeling better soon and everything goes well with your appts.
    Cheers, Donna
    Parts of your story could have been written by me! Lost job even though I had never had anything but glowing reviews. Denied long term disability that I had been paying for 8 years. etc. etc. I completely understand what you went through. I will even add that I blame the Lupus being "turned on" because of chemicals that were leaking into the office for several years. Now I am waiting for the SS Andministration to approve my disability which we have been fighting for since early ast year. As much as I hated how it went down and I need money and insurance in order to live, I can't imagine having to work now. There is just no way I could work everyday right now.

    OK, off to the doctor for me. Hugs to all of you
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Hi Donna,

    Thanks for the reply and support. It feels so good to hear that someone else understands and can relate i.e. broken symptoms record......Sorry to hear about the job situation. I think it is amazing that you sued-congratulations. I will keep my fingers crossed about the second litigation-assholes! Hopefully that will work out and you won't have to worry about $ so much. So stressful. Perhaps then you could work part-time?
    I think that my gum pain might be related to sinus pressure/inflammation. Not sure though.
    A week to go before my rheumy appt. Any suggestions? I'm really nervous. I feel like I have so much riding on this appt. I'm due to go back to work the day after the appt. (9th). I'm feeling better these days-probably because I'm not working, less stressed, and can rest when I need to. Also, a lot of the symptoms seem to be going away-so I'm wondering if this flare is finally almost done and I'm going into remission. Who knows. I still have sore joints, and chest pain. Do you bring up any phlegm/cough? How did you get diagnosed with inflammation of lungs/heart?

    Hope you are having a good day so far,

    w

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    Hi Wendy!

    I think you must be a long lost twin sister because you just described all of my symptoms pretty well.
    "...I have cankers in there-man they hurt. My left eye and my throat have been really bothering me too...I also have to go for an ECG/chest x-ray. I've been having chest pain-a heaviness in my chest-that feels a bit better when I sit up/stand up. Still with the joint pain, flu feeling, sore glands, fatigue, night sweats, abdominal pain, hives, crusty eyes in the morning, sinus headaches-sore gumline, IBS" All of that could have been written by me and might have been pulled from my thoughts word for word. Just sprinkle in a little Type 2 Diabetes and Sarcoidosis and Psoriasis and auburn hair and we might even look like twins too! I'm sorry to hear that you are going through all this. I would advise that you ask your doctor to also run your ACE levels - to test for Sarcoidosis - because it mimics Lupus and physically looks very very similar.
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



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    Hi Tortugal,
    Hope the day went by fast and you are now at home relaxing. Do you take any medication?

    Wendy

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    Hi sandy,

    Good to hear from you. I've read a lot of your posts..Do you have an SLE diagnosis? I'm off to google sarcoidosis. Hope all is well.

    Wendy

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    Hello Wendy,
    Hows your health now mate and sorry i've not been intouch for abit. Refering mysef still the same mate but the plaquenil is starting to work but i am dreading next week got to have a caffeter done, two tubes through my cervix and another up my back passage feeding fluid through for the other two to see what's going on, this Lupus and it's symptoms as got alot to answer to ahhhhhhhh. lol

    Luv Terri xxx

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    Oh Terri, that doesn't sound like much fun. Why do they have to do this procedure? Glad to hear that the plaquenil is starting to kick in..I had my appt. with rheumy yesterday. He was rushed and not very methodical, I sure hope he knows what the hell he is doing.He sent me for some tests: ESR, CRP, AST, ANA, anti ds DNA, ANCA, B12 folate, iron, ferritin, TIBS, CBC, creatinine, ck, alt and urine. Does that sound about right? Fingers crossed that he can figure this out. He mentionned Lupus and connective tissue disease as well as urticarial vasculitis and pernicious anemia.....Once again it's the waiting game now.

    Try not to think about the test you have to have done-I know-easier said than done.

    take it easy toots.

    wendy
    .




    Quote Originally Posted by Peridot20_Gem View Post
    Hello Wendy,
    Hows your health now mate and sorry i've not been intouch for abit. Refering mysef still the same mate but the plaquenil is starting to work but i am dreading next week got to have a caffeter done, two tubes through my cervix and another up my back passage feeding fluid through for the other two to see what's going on, this Lupus and it's symptoms as got alot to answer to ahhhhhhhh. lol

    Luv Terri xxx

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    Hi Wendy,
    They're doing that procedure due to me losing loads of blood and when niot losing the blood i have small amounts of urine pass at times and it can be different things but it can also be the cause of to much protein in the urine from Lupus but god knows where the results will be going until i ask at the hospital.
    Wendy i don't know about your Rheumo specialist mate but i don't rate mine, just took a quick look at my background and like yourself 12 bloods took in the names you've mentioned but some i don't understand, i just like to see it in black and white what i have and it was when he sent a couple of letters to my GP who let me have a copy.
    Pernicious anemia is megolablastic anemia which i have, they gave me zinc tablets and they was'nt enough so i'm having B12 Jabs now for life every 3mths, it makes you lifeless.
    If your ANA comes in high then you most likely have Lupus in your system, my ANA & ENA came in high and the rheumo would'nt say if i had it or the doctor in the day unit but i've got a great dermo specialist for my raynauds and he told me i had it but when i see them in august they want to do a DNA test on me, god knows what else they want to confirm me with.

    Thanks for support coming next week mate & rest yourself also.

    Terri xxx

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    Hi Wendy,

    I hope your not suffering to much today mate and if your like me feel ready for the knackers yard [excuse the expression].
    The quicker you get your results you'll know better with what your dealing with.

    Love Terri xxx

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