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Thread: Suggestions needed......

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    Unhappy Suggestions needed......

    My old tried and true methods to get back to sleep aren't working anymore. Any one have any suggestions??? I can't allow this to continue; I want to accomplish things during the day and fulfill my commitments.

    Help please,
    toni

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    The only thing that works for me, Toni, is turning on the TV so I can turn off the brain. Yep, the distraction of the TV seems to take my mind off the fact that I'm awake, again, and I have to get to back to sleep. This has only been an issue for me since I've changed my meds for restless legs and I'm not liking it one bit!

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    Quote Originally Posted by BonusMom View Post
    The only thing that works for me, Toni, is turning on the TV so I can turn off the brain. Yep, the distraction of the TV seems to take my mind off the fact that I'm awake, again, and I have to get to back to sleep. This has only been an issue for me since I've changed my meds for restless legs and I'm not liking it one bit!
    what did they give you now? I think I've said before that I take mirapex and tizanidine for my temors and spasms. TV was my old standby; it stopped working years ago, maybe it will work again.

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    The only thing that works for me is my amitiptyline. Without it I get no sleep
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

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    I started Requip .5 mg two weeks ago. Unfortunately, it gave me horrible headaches and wasn't helpful in the least (woke up at 1:00 am three nights in a row). I called the sleep specialist and she instructed me to cut the dosage in half for a week. Last night was my first night at the full dose and I did pretty well considering I slept on the couch. I'm just hoping I don't develop the HA today.

    I had been taking Klonopin, 1 mg daily, but it left me feeling hungover in the morning. I was having a hard time waking up and getting to work on time.

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    I too have lots of trouble sleeping or i go to sleep for short periods of time and awake and it takes hours till i fall back to sleep. On average i get maybe 4 hours a night but i do not want any other meds. Hope you get some relief Bonita

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    I was on trazadone and managed around 4 hrs of sleep a night. I gave up on the trazadone and now I get around 4 hrs of sleep a night. With that kind of comparison I didn't think it was really necesarry for me to take more meds. Pretty much mirror image of you Bonita on the nightly sleep pattern. I just try to do what I can when I am awake, some times I have to go back to bed after about 4 hrs and take a nap.
    Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our tribulations, that we may be able to comfort those who are in any trouble, with the comfort wich we ourselves are comforted by God. 2 Corinthians 1:3

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    So I guess I'm like all of you. I get 4-6 hours a night. My problem is I can't get a nap during the day. So by 3 or 4 I'm done. I still have 2-3 hours to go at work. I just don't know how to do it anymore. Especially after the nights when I fall asleep at 11 or 12 and wake at 2 then am awake til 6 like last night. It makes me want to cry.

    Toni
    Last edited by Nonna; 02-13-2011 at 05:47 PM.

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    I also have trouble sleeping , i seem to wake at 3:00am or my new thing is 2:00am, Way to earley and cant go back to sleep and by 12:00 noon im wiped out with fatigue.
    I use to take trazadone id sleep like a baby but be drug out the rest of the day.
    For 2 yr's ive been on (neurotin) or gen name gabapentin & xanax for bed time it has worked well and no hangover feeling next day, and the neurotin helps my neuropathy leg nerve pain
    and supose to help restless leg syndrome also. Guess im in such a bad flair and new meds right now has messed my sleep pattern up, and it's not a good thing.
    Hope your sleep get's better!
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

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    I'm another one whose sleep patterns have totally changed since getting sick with this AI stuff. I used to fall asleep as soon as I hit the pillow and knew nothing until the alarm rang. I even nursed the babies in my sleep and never felt sleep-deprived when the kids were young, unless we were up with a sick one.

    Now, all that has changed. I'm also bad about waking up between 2 and 3 and then taking well over an hour to get back to sleep. I have to sit up in bed to turn over, since my hips hurt so badly. My legs often wake me with spasming. I have to run to the bathroom. I go to bed freezing, wearing fuzzy socks for the Raynaud's, but then I wake up drenched in sweat.

    A while back, Jeff gave me a magnesium pill (to relax muscles) and a melatonin at bedtime. I've found that I sleep better when I take these. However, I've been a bit concerned about taking the Melatonin. I read that it is a hormone that is made by the pineal gland. This got me to thinking. Sjogren's attacks glands, so I wonder if it has attacked my pineal gland, and so my body isn't making enough Melatonin by itself?

    I tried an experiment this weekend. Since Jeff was having a C-Pap free weekend, I knew that the noise of that awful contraption wouldn't be disturbing me. On Friday evening, I didn't take my pills. I was reading, and I didn't feel at all sleepy until nearly 1 a.m. (We're usually in bed by 10:30 p.m.) I had a rough time getting to sleep, even that late. I woke up at 3:30, drenched in sweat, which has not been happening when taking the Melatonin. I was awake every two hours after that, but still got up by 8 a.m., my usual time, feeling awful.
    Last night, I took the magnesium and Melatonin, and thankfully, had no C-Pap noise again. I fell asleep as soon as my head hit the pillow. I vaguely remembered sitting up to turn over a couple of times, and pulling off the socks when my feet warmed up, but I slept very, very well until my usual time this morning.
    I'm really wondering if my theory is right, and Sjogren's has damaged my pineal gland? What do you guys think?
    I'm back to taking the Melatonin - at least I get a decent night's sleep.
    Hugs,
    Marla

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