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Thread: Immuran Questions - Experiences Needed Please

  1. #11
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    Hello Gizmo,

    I was told that on wednesday gone the gastro specialist would see my results, so now i'm waiting for an appointment.

    Well it's nice to know of someone's taking the drug and i really hope i can master it, well if your daughter can then i can give it a good shot at least and if it's injection form i'd be able to do that also as i used to inject myself with wulfrin daily.
    When i told my neuro about it, she told me that other epilepsey people was on it and doing fine refering their seizures and she was more for me taking that drug than the plaquenil but she does'nt want me on nothing till my liver as been sorted incase the meds for Lupus could make the Tumour and liver worse because they want to surpess my immune system.

    Thanks for letting me know that Gizmo i really appreciate it. xxx

  2. #12
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    Glad I could help - you give SO much encouragement and information to the people on this forum. I look at your list of medical conditions and am just amazed that you can be here in such a big way for others when you have so much going on yourself. I hope the methotrexate gives you some relief so you can enjoy life even more.

  3. #13
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    Quote Originally Posted by BonusMom View Post
    I've been on Imuran, 100 mg daily, since September. Although my rheumy said that my dose is too low to cause hair loss, I have lost approximately 50 percent of my hair since Nov/Dec.

    I have had no side effects from Imuran, other than occasional low WBC's. I have had no benefit either so we've agreed that I would stop taking it.
    You lost 50% of your hair in 2 or 3 months? Did you have any warning before it started falling out, was it gradual or all of a sudden? You think if you had stopped taking Imuran, it may have prevented that much hair loss? It's just not a side effect I would ever hope to encounter, and if I do, I would surely hope that it could be stopped in time.

  4. #14
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    Gizmo,

    I do appreciate the help and i try to help other's through years of experience and so much connected to Lupus and besides that it's still knowledge from other member's such as yourself.
    The only time i'm unable to come on here is when it messes with my concentration and looking at the screen affects my eyes so i have to pull off for a day or two.
    When i told my psychiatrist about my ailments being linked to the Lupus he went mad and he said all these years you've gone through things and all it took for doctor's was to do a few extra bloods, he said to me you've got good grounds for suing but Gizmo just facing the day is enough for me and as long as i can get by each day i'm happy enough, because seizure's alone without Lupus mess your head up at times and cases involving suing i could'nt cope with.

    Well i'm just hoping that when they do eventually start me on methrotrexate it helps me to walk better without constant pain, i think i'd be living in HEAVEN MATE if that happened. lol

    Enjoy your day and also your daughter. xxx
    Last edited by Peridot20_Gem; 05-29-2011 at 08:05 AM.

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