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Thread: Now what?

  1. #11
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    Quote Originally Posted by magistramarla View Post
    Debbie,
    I am so sorry that you are having those problems. You are very lucky that your rheumy is on top of this. Hopefully, it will get resolved soon. I wonder if he could refer you to a teaching hospital if this is something that he's not used to dealing with?
    I read Mari's link, and I've read such articles before. That's why I'm so worried at my current rheumy only seeing me twice a year while I'm on MTX. She didn't even order any lab work when I saw her in Oct.
    I'll see her next week, and it will be really interesting to hear if she expects me to have lab work, since she's the one who forgot it.
    After this appointment, I'm calling the Sjogren's expert in San Francisco. I'm worried that this doc has really dropped the ball on my health care.
    Keep me informed on what happens with your problem.
    Hugs,
    Marla
    Marla,

    I would tell her, that you want a bloodtest. Twice a year is not enough, because MTX is some harsh stuff.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

  2. #12
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    Marla,

    I would bring in some articles with the important points highlighted and tell her she should be giving you the blood tests and you would like a script.
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



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    Thanks, ladies
    Actually, I've lost confidence in her and I want to go to the specialist in SF. I met her at the Sjogren's Conference, where she was a speaker. BonusMom drives a distance to see her and says that she is worth it. Jeff and I both have to go up there for our various specialists, so this will just make one more.
    I've tried pointing out info in articles to my current rheumy. She told me that I "read too much, and should stop worrying". She's not worth my time.
    Hugs,
    Marla

  4. #14
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    Quote Originally Posted by magistramarla View Post
    Thanks, ladies
    Actually, I've lost confidence in her and I want to go to the specialist in SF. I met her at the Sjogren's Conference, where she was a speaker. BonusMom drives a distance to see her and says that she is worth it. Jeff and I both have to go up there for our various specialists, so this will just make one more.
    I've tried pointing out info in articles to my current rheumy. She told me that I "read too much, and should stop worrying". She's not worth my time.
    Hugs,
    Marla
    Well its easy for her to say, it's not her liver. I hope you can find a good one.
    Whenever they say, " you read to much" they are afraid that we might know more than they do. Which some of us already do.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    Great post debbie! I agree about the "you read too much" comment! It simply means you are more educated then they are!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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