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Thread: new to lupus

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    Thanks for the encouragement. I have an appt. With my rhummy the beginning of march. Question. Lately, my hands and fingers turn ice cold and a pale yellow if i' holding something cold for a few seconds or if I 'm outside for a few seconds. Does anyone else have this problem? I'm on coumadin for blood clots caused by my SLE so I don't know what's causing this prob?

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    I welcome you. I too know what you are going through we all do. I like to tell myself that right know I don't feel well but Tomorrrow will be better. Because that will keep me going. I have really good days and many not so good days but they are all right when they say stress is not good. It caused my last flare and this one has been a long one. So please try to relax remember you are not alone. This is the best site to come to when you are down they know just what to say. Take Care We Are All Here For You !

  3. #13
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    Quote Originally Posted by wilsgurl View Post
    I've been feeling really depressed over the past few days about what Lupus has done to my physical appearance. My appearance has always been most important to me, and although I have SLE, my skin looks horrible. I've had acne breakouts that have left scars on my face, the prednisone has me puffy, but my hair has finally started growing back. The worst thing was when my grandmother asked me what happened to my skin because I used to have smooth, pretty skin. She doesn't know I have Lupus, so I played it off as stress. It was a really hurtful thing and I feel this is a curse. Is this kind of depression normal for Lupus patients? I know this is one of the symptoms of Lupus.
    Hello wilsgurl,
    Depression is the worst cause for kicking it off and like yourself i have manic depression hit me years ago so when it comes on at me terrible the amount of crying i do is mad but you can guarentee i start itching once i carm down, so try and keep as carm as you can and even rest with it but it will not make the situation no better.
    Everything your saying about your face, scars and so on i have those and it's left me with scars but really trying to sort yourself out besides with the lupus is more important to keep your appearance up, i can't tell you what to do but just be as carm as you can. [as i know it's not easy to say but just trying to help]
    Well they've just started me on plaquenil so i've got to see the effects that it gives me but i am pleased your hairs growing back, mines in that awkward stage of shortness, as mine was long and i went bald in a few places so i chopped the lot off to help it and the patches grew back.

    Symptoms of lupus to help you below

    No two cases of lupus are exactly alike. Signs and symptoms may come on suddenly or develop slowly, may be mild or severe, and may be temporary or permanent. Most people with lupus have mild disease characterized by episodes — called flares — when signs and symptoms get worse for a while, then improve or even disappear completely for a time.

    The signs and symptoms of lupus that you experience will depend on which body systems are affected by the disease. But, in general, lupus signs and symptoms may include:

    ■Fatigue
    ■Fever
    ■Weight loss or gain
    ■Joint pain, stiffness and swelling
    ■Butterfly-shaped rash (malar rash) on the face that covers the cheeks and bridge of the nose
    ■Skin lesions that appear or worsen with sun exposure
    ■Mouth sores
    ■Hair loss (alopecia)
    ■Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud's phenomenon)
    ■Shortness of breath
    ■Chest pain
    ■Dry eyes
    ■Easy bruising
    ■Anxiety
    ■Depression
    ■Memory loss
    Last edited by Peridot_Gem; 02-15-2011 at 06:23 AM.

  4. #14
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    Quote Originally Posted by wilsgurl View Post
    Thanks for the encouragement. I have an appt. With my rhummy the beginning of march. Question. Lately, my hands and fingers turn ice cold and a pale yellow if i' holding something cold for a few seconds or if I 'm outside for a few seconds. Does anyone else have this problem? I'm on coumadin for blood clots caused by my SLE so I don't know what's causing this prob?
    Hello Wilsgurl,
    Your welcome to the encouragement by we all, we just try and help as we're all going through it.
    It sounds like you've got Raynauds what you stating with your hands and it comes in different degree's i have Raynauds Phenonemon which is the full extent, i'm typing this but still having to wear gloves as if not my fingers feel like they have frost bite, it's so terrible and in heat don't stop out to long my body can only hold 10mins the most and that's with 50 block on.
    I also had blood clotting and was on wulfrin, a recent test as been done where i have no clots at the moment thank goodness where that's concerned and the pain and tightness of the skin.
    Sle/lupus is usally inherited from parent's but is known to develope out the blue i was born with it but the sooner your able to see your rheumo the better to have bloods done more and to finally see what's going on, i'll add below about Raynauds disease and you usually see a dermatologist for that.

    What Is Raynaud's?
    Raynaud's is a rare disorder that affects the arteries. Arteries are blood vessels that carry blood from your heart to different parts of your body.

    Raynaud's sometimes is called a disease, syndrome, or phenomenon. The disorder is marked by brief episodes of vasospasm (VA-so-spazm), which is a narrowing of the blood vessels.

    Vasospasm of the arteries reduces blood flow to the fingers and toes. In people who have Raynaud's, the disorder usually affects the fingers. In about 40 percent of people who have Raynaud's, it affects the toes. Rarely, the disorder affects the nose, ears, nipples, and lips.

    Overview
    Often, the cause of Raynaud's isn't known. This type of Raynaud's is called Raynaud's disease or primary Raynaud's.

    Sometimes a disease, condition, or other factor causes Raynaud's. This type of Raynaud's is called Raynaud's phenomenon or secondary Raynaud's. Primary Raynaud's is more common and tends to be less severe than secondary Raynaud's.

    If you have primary or secondary Raynaud's, cold temperatures or stress can trigger "Raynaud's attacks." During an attack, little or no blood flows to affected body parts.

    As a result, the skin may turn white and then blue for a short time. As blood flow returns, the affected areas may turn red and throb, tingle, burn, or feel numb.

    In both types of Raynaud's, even mild or brief changes in temperature can cause Raynaud's attacks. For example, taking something out of the freezer or being exposed to temperatures below 60 degrees Fahrenheit can cause your fingers to turn blue.

    Raynaud's

    Most people who have Raynaud's have no long-term tissue damage or disability. However, people who have severe Raynaud's can develop skin sores or gangrene from prolonged or repeated Raynaud's attacks. "Gangrene" refers to the death or decay of body tissues.

    Outlook
    About 5 percent of the U.S. population has Raynaud's. For most people who have primary Raynaud's, the disorder is more of a bother than a serious illness. They usually can manage the condition with minor lifestyle changes.

    Secondary Raynaud's may be harder to manage. However, several treatments are available to help prevent or relieve symptoms. With secondary Raynaud's, it's important to treat the underlying disease or condition that's causing it.

    Researchers continue to look for better ways to diagnose and treat Raynaud's.
    Last edited by Peridot_Gem; 02-15-2011 at 07:13 AM.

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    Thanks for the info. Today is a better day and now that I have some idea about what's going on with my body, these things that are happening to me make sense.

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    wilsgurl,
    Your welcome there's so much to learn about the condition's and what you can't get off the rheumo specialist's you can definitely get it from the member's and i'm glad the info as settled your mind abit and what to expect.

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    The past week has been interesting. I visited my gynocologist and she wanted me tested to see if I have a problem with my pituatary gland instead of lupus. She thinks ot may be a pituatary gland tumor, which is easily removed. I've investigated the symptoms of the pit tumor and have more symptoms of that than lupus. I did, however, read that prednisone can cause these tumors so maybe it's an additional prob on top of the lupus. I'm staying in prayer this will soon resolve itself

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    Quote Originally Posted by wilsgurl View Post
    The past week has been interesting. I visited my gynocologist and she wanted me tested to see if I have a problem with my pituatary gland instead of lupus. She thinks ot may be a pituatary gland tumor, which is easily removed. I've investigated the symptoms of the pit tumor and have more symptoms of that than lupus. I did, however, read that prednisone can cause these tumors so maybe it's an additional prob on top of the lupus. I'm staying in prayer this will soon resolve itself
    That is a good test to have. It was one of the things that was ruled out for me. Remember, Lupus is as much a disease of what you don't have as what you do have. Lupus is only diagnosed when all other options have been disproved. I am glad you have someone testing you for other things. That is a positive thing because most of the diseases they test for have some kind of "fix".

    Keep us posted!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Quote Originally Posted by wilsgurl View Post
    The past week has been interesting. I visited my gynocologist and she wanted me tested to see if I have a problem with my pituatary gland instead of lupus. She thinks ot may be a pituatary gland tumor, which is easily removed. I've investigated the symptoms of the pit tumor and have more symptoms of that than lupus. I did, however, read that prednisone can cause these tumors so maybe it's an additional prob on top of the lupus. I'm staying in prayer this will soon resolve itself
    Hello wilsgurl,
    I am glad your gyno is covering a test on you for a pituatary gland besides just thinking Lupus all the time, there's quite a few lady member's on the site besides myself had to go to gyno specialist's plus tgal's been there herself by what she says.
    Medication of any sort can always cause extra problems ontop for example when i had DVT they thought the Tegretol had caused it and now finding out i've had the Lupus from birth i'll never know to this day which it's connected to, the rheumo specialist thinks it's the lupus but who knows.
    I do wish you all the best and please let us know how it goes. xxxxxx

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    Hi Wilsgurl,

    How are things going mate and how did the test go with the pituatay gland or as'nt it been sorted yet, please get back to us and let we know how your doing??

    Terri xxx

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