Update on high W.B.C. & very scared & worried, reummy pulled me off imuran & low pred
As some know i was supose to go get my reclast infusion this fri to protect my bones becuse of the 40mg of predisone reumy has me on a day. Well for
the past 2 wk's i've been feeling extremly tired,little red dot's under my skin,
& so weak i have to hold on to the walls just to walk to the bathroom, feel's like my leg's just wont hold me up. The fatigue & weakness is even worser than my lupus or sjogrens flair's. No appetite, and still no weight gain witch reummy said i would gain on the pred & imuran.
Last week i got the yeast infection from one of my autoammuine diseases witch thats normal about twice a year, but in 1 day time i noticed it it had ran my whole body so went to dr. gave me diflucan & checked my urine & no kidney inf, and told dr. i was extremely weak & i thought maby the imuran had
droped my red blood count to low. He said to tell my reumy fri when i go for reclast infusion & tell her to check my blood count's.
So friday when i got to reummys office i demanded they check my blood work before the reclast told them my symptoms, and my reumy did & it come back
it was my white blood count was 18.400 extremly high! The nurse told me my reumatologist wanted to talk to me first & since i was not to see her fri i know something was wrong with my blood work. She was very concerned and ask did i have an infection, i told her not that i knew of not for my wbc to be that high, no fever, just i was severely weak & fatigued & felt very bad & a little cough.
So bless goodness she pulled me off my Imuran imadiatly & drop my predisone to 40mg a day to 20mg a day & gave me a prescription of zithromax
z-pack incase i had an upper respatory infection due to me coughing!
I had been trying to keep upbeat with all thats going on and test after test
even lip biopsy was neg for sjorgrens in the salave gland's, But this just totaly
got me so depressed i cryed all way home, that high of white count and it was climbing before i started imuran & pred it was 13.500 whitch is elevated high is a huge Red Flag for Leukemia or hodgkins, witch ive been suspecting
& fearing the back of my mind for a while now becuse of my symptoms.
So now im off the med's that was supose to slow the inflamation down in my brain becuse of cns vasculitis, and i horrified the vasculitis is going to take what little thinking i have left as it has been progressing fairley fast due to info on m.r.i's.
And also could not do the reclast infusion becuse of high wbc.
I have an appt to go back to see my rummy in 10 more days, and she was wanting me to come in sooner, so she told me if im still feeling verry weak
by monday jan 31, go to my family dr. & let him ck my blood work again and see what he thinks! So i pray the wbc go's down if not im horrified there gonna want to put me in hospital and do more test, Becuse if i dont have a severe infection some where it can only be leukemia or some kind of hodgkins
cancer with a white count of 18.400, my wbc has been elevated for several years now but it steadly jumping started about 3 mont's ago, And with my dermatologist also told me last month that my reummy seriously needed to check me for leukemia or lymphoma, if it is i hope & pray they get serious
now and check for it ,and if it is cancer it's in the earley stages to where i
will have a good chance if beating it with med's.
Thank's for letting me vent on these dr's And thank's so much for listening
& careing and all the wonderful people here at WHL!
Dont know how i would make it through all this without you all!!!!!
Gentle Hug's to all and wishing all less pain today!! Love Diane,,,
~Where Hope Grow's, Miracle's Blossom~
(CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.