On January 14th my life forever changed. My daughter, Alexandra was hospitalized and later diagnosed with Systemic Lupus Erythematosus. I'm so overwhelmed by everything that has happened in the last two weeks that I don't even know how to process everything.
We took her to the doctor because we thought she had the flu. We found out the next day that her kidney was only functioning at 25% and that she was extremely anemic. In the hospital, her kidney function went down to 20%, she had blood in her lungs, a leaky heart valve, fluid around her heart and arthritus. She was released from Children's yesterday and all she does is cry, because she is so afraid that she is going to die. 3 weeks ago I had a larger than life 16 year old.
I could really use some advise from parents of a teen with SLE. I just want to make sure that I do everything that I can to help her.