You will, most certainly, find love, support, understanding, and caring here. You will also find that we are more than happy to provide you with information, advice, and suggestions to help you live with this disease and maintain some form of life.
Managing this disease does mean that you will have to make some lifestyle changes in order to avoid flare-ups. You must, at all costs, avoid exposure to the sun. If you must be in the sun, it is important that you cover your body with sunscreen (minimum SPF of 45). Do this in the winter, summer, spring, and fall!! Also, keep your body covered in clothing to restrict any sun exposure to your skin (a hat and sunglasses are also advisable).
Try to do some form of exercise on a regular basis. Preferably, a form of low-impact exercise (swimming, walking, yoga, pilates). It is important that you try to exercise regularly.
Eat a healthy, well balanced diet, the diet recommended by the American Heart Association has been approved, by many doctors, for Lupus patients. There are some foods that we are told to avoid, such as high protein foods, soy products, alfalfa sprouts, and excessive caffeine. Foods that are recommended include; Iron-rich foods, fish, antioxidants, vitamins (Vitamin E, zinc, vitamin A, and the B vitamins are all beneficial in a lupus diet. Vitamin C can increase your ability to absorb iron and is a good source of antioxidants. Vitamin D is especially important for people with lupus because we need to avoid the sun, and that can result in lower absorption of vitamin D. Calcium and vitamin D are known to help reduce the risk of osteoporosis).
Take your medications as prescribed and keep all of your doctor's appointments. One of the most important things that I advocate is EDUCATION! Learn as much as you can about the disease, how it affects you personally, its medications, its treatments, and what they mean to you.
Of course, we are here to help you in any way that we can and as much as we can. Please know that you are not alone when you are here with us and that we truly understand what you are dealing with. Come to us at any time, day or night, and you will always find that there is someone here willing to help you.
Welcome to our family
Peace and Blessings
Look For The Good and Praise It!