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Thread: Hi! New here!

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    Cool Hi! New here!

    Hi to everyone! I am happy to find this forum. I have read some of the posts and can certainly relate to a lot of them. I have a positive ANA, am sensitive to the sun, elevated sed rate, my other lupus tests are negative. I can't tolerate the sun and I have a lot of joint pain. The rheumatologist put me on plaquenil 200 mg a day and 10 mg of prednisone a day. I am feeling better. Still a little tired. I think a higher dose of prednisone would be better but I don't want to go there.
    I just wish they knew for sure what this was. They said perhaps a mixed connective tissue disease or overlap. They are not so worried about putting a label on it but getting me well. I guess don't have a problem with that. I just am tired of being tired and achy. I want to get back to exercising and feeling energetic. I am too young to feel this old. I am going to try an exercise class today for the first time in several years. I am going to take it very slow!
    Thanks for listening!

  2. #2
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
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    Hi Jeanneac and welcome to WHL! We are so glad that you found us. This is a wonderful site full of great people who are always willing to help.

    So many of us know the place that you are in right now. No name but meds to try to fix the symptoms. Even with a name that is pretty much all they can do. Let us know how the exercise goes tonight. I look forward to getting to know you
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hello Jeanneac, welcome to our group. Please make yourself at home!


    Rob

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    Hi Jeanneac, And welcome!!!!!! There are lot's of wonderful people here! and load's
    of information. Hope you have a great day! Diane,
    ~Where Hope Grow's, Miracle's Blossom~
    Diagnosed,
    (CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.

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    yup I am in your boat too, so scoot over Welcome! Hope you did ok at your exercise class! I just got a "medical hold" on my gym membership because I haven't been able to do anything in a few months, so you are doing better than me, at least you're trying

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    Hi Jeanneac,
    Welcome to our large family of the WHL and i hope your exercise class goes well for you.

    Refering what your going through we all know what your suffering and how it can make you feel plus i hope the threads we've all added help you in one way or another.

    It will be nice getting to know you Terri xx

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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Hello and Welcome Jeanneac:
    Welcome to our family where you will find that everyone here understands and is more than willing to offer help, in any way that we can. I am glad that you are here

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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    welcome jeanneac to whl glad you have joined us we are a family here always here for one another hugs kim l

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