And welcome to WHL!! So glad you've joined!! And you story sounds so simular to mine.
Mine has been 7 long year's of weird symptoms going from skin symptoms to organ symptoms,
Doctor to doctor, that half never listen. Test after test, and left them all scratching ther head's
and trying to figure it out they just kept saying it's something auto ammuine going on.
My ana would always come up positive and elevated wbc.and the test for inflamation would come back slitely elevated at times but the rest of the test for lupus & sjogrens kept comming negative even though i was so sick.
I also have hair loss, weird skin hives,weight loss4 lb's in 3 days, severe back & knee pain,
skin rashes and little sores, severe muscel spasam's and pain& on & on!
My reumatologist just put me on predisone 40mg a day and i just started the Imuran yesterday
becuse either the lupus or sjogrens has gone to my brain causeing cns vasculitis, there thinking it's the sjogren's so just had a lip biopsy to try and conform sjorgens cause my blood work for sjogrens keeps comming back neg, But i have all the physical symptoms of it.
There are wonderful careing people here!! And lot's of great information!!!
They have all surley been a great help and blessing to me in my scared and trying times
during this whole diagnosis process!!!
Again welcome! And Gentle Hug's to you, hope you have a great day!!! Love Diane,
~Where Hope Grow's, Miracle's Blossom~
(CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.