Set Back on treatment plan due to high white blood count, for cns lupus ,sjogrens
well, went to reumatologist appt to get on Imuran, & 40mg predisone a day
also dr's very woried about strong dose of predisone hollowing out my bones
and makeing them fragel to breaking,also is going to do an infusion of reclast
as i have a lot of stomach issues already ,so they say the reclast not so
tough on gi problems. and also 2 citracal's a day along with 1,000 vit d.
Well they have to check your blood work to make sure your healthy enough
to start the med's and, reumys nurse called me on my white blood count &
said it came back high 13.2000 & i could not start the imuran with my wbc that high. she ask if i had a kidney infection, i told her no.
that high white blood count kinda scared me as for last 2 weeks been having chills,low fever, acheing to the bone in my legs, weak legs, no appetite
and lost 4 lb's, was little worried maby lymphoma if i was not haveing a very
bad lupus or sjogrens flair, witch those are the symptoms i have with the flairs
except this one was worse lot's more pain and very weak.
So i got very upset on the set back becuse of the severly fast progression in
my brain from the vasculitis caused by either lupus or the sjogrens.
So i went to after hours clinic yesterday morn ,also had to do my lip biopsy
yesterday @ 10:30am, told dr. @ after hours to check my urine to se if i had a
he checked urine and did a flu swab just to make sure i didnt have flu
with symptoms of chills & acheing. And all come back clear & negative!
So dr. said i was probly haveing a bad flair with my lupus & sjogrens.
So reumatologist nurse told me to come back this wed & do another cbc test
to see if my white count is gone back down. I pray it go's back down.
Still in pain from lip biopsy this morn, ent dr. took 8 little salava gland's
guess he wanted to make sure he got enough LOL! I hope so dont
want to do that again! have a lip full of stitches .
If white count is not down, scared of what test there gonna want to do
then to see why all the sudden my white count is high, if it's not becuse of an
infection in my body.
Plus they set me up for a 6 hr scycatric type test to evaluate how much
brain damage the vasculitis has done so far, and will do another one after ive been on the imuran & predisone for a few months plus another mir to
see if the med's is slowing the brain dammage down and the lupus & sjogrens.
Sorry such a long post, was giveing you all an update on what's going on.
Both my reumatologist call me there SPECIAL patient lol I wish i wasent
so special! So ready to get off this roller coaster ride!!
would appreciate any input if someone has had there wbc go high with
there lupus or sjogrens.
Reumatologist also said if imuran & predisone showes on my mri check in aprox 2 month's that the brain disease is still progressing fast, there talking
about a brain biopsy! Just dont know if i will agree to that! So praying
the imuran & predisone work, if wbc will go back down.
Thank you all so much for listening & careing and being here!!!!
~Where Hope Grow's, Miracle's Blossom~
(CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.