I am sorry to hear that you are getting no relief from your medications. One thing that you should know is that every person's Lupus is different. None of us suffer from the exact same symptoms and we do not all take the exact same medications.
There are some medications that are somewhat standard, but the dosage and instructions may be different. Some of us have Lupus without any internal organ involvement, some of us have almost all of our internal organs involved. Some of us do not have the arthritic pain, but some of us have pain in every single joint and muscle. Some of us have central nervous system involvement, some of us have only skin involvement. I could go on, but as you can see, Lupus can come in hundreds of different forms and there is no way to put it in a precise category that can answer your questions specifically. I'm sorry, I'm sure that this is not what you wanted to hear and that you wanted specific answers.
You did not say what medications you were taking or how long you've been taking them. There are many medications used for Lupus that are cumulative. This means that they have to build up in the body before you will see any significant results. This can sometimes take weeks to months. Also, there are many of us who have had to change our meds and their doses over periods of years before we finally found the combination that gives us the relief that we need. Many of us still have not reached that point and, like you, are still experimenting with our medications and their dosages. Without knowing what you are taking or how long you've been taking them, this is the best response that I can give you..again, I'm sorry that it is not exactly what you needed.
I am considered to be in remission (or actually downgraded to Mild Lupus). I, currently, do not take any medications for my Lupus (I should mention that I have severe Fibromyalgia also and am taking lots of medications for that - some of which are the same as some of the medications prescribed for Lupus). Remission does not always mean a complete absence of symptoms, nor does it necessarily mean that the disease has gone away. There are those lucky few who do have complete remission, but it is important for you to know that this does not happen all of the time. For most of us, remission merely means a period of time when our symptoms are less active and, therefore, we can reduce some of our medications. Even though I do not take medications for my Lupus, I STILL suffer from Lupus flare-ups because the disease has never really gone away..it is just not as active as many other's with the disease! So, even in my supposed state of remission, I must still take all of the precautions as a person with very active Lupus.
We live our lives doing all that is necessary to avoid flare ups, regardless of the type of Lupus that we have. That is part of how we manage our disease.
I wish that I was able to give you concrete answers, but it is impossible to do with this disease. However, I do hope that I was able to help you a bit. Please let us know if you need anything further and feel free to ask any question that you may have, we are here to help you as much as we can. I wish you the very best
Peace and Blessings
Look For The Good and Praise It!