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Thread: On the Methotrexate Road Again

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    Default On the Methotrexate Road Again

    Well, after over a year off of the icky medicine, I'm going back on it. If it doesn't work, then she said we could look at Cellcept? So, we'll see. I asked hubby, "So, what day of the week do you want me to be sick on?" Really not looking forward to this! WAHHHHH LOL
    Lauren

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    Hi red,

    I have just been put on MTX for the first time.
    I have picked it up from the pharmacy, but haven't taken it yet.
    First of all, I am scared and second, I have to try and work out a day off with my boss.
    So that I can take it, the same day every week. I don't always have the same day off.
    When you have taken it before, did you have any side effects?
    Good luck.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    Debbie,
    If I remember correctly, which I may or may not, I had nausea & some stomach cramping, tired, achey and just overall feeling of ill - similar to the flu maybe. There used to be a thread for those of that took it. I'll have to see if I can find it for you. The ladies were great when I first started. I do remember that after I had been on it for a while the side effects lessened. It was the initial getting used to it and then again whenever the dosage was increased. I can say take your Folic Acid! It does help. I took mine on Friday evening so that I had the weekend to be sick. I also think that the first time I took it, it was on Sunday that it really hit. Everyone is different in their reactions to it.

    I know it's scary, but it is worth it. I wish I had never gone off of it. I only pray that it will work again. Off to find the posts! (((HUGS)))
    Lauren

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    Debbie,

    Here ya go! It has pages and pages of posts. Some of it has nothing to do w/Meth (haha) but alot of it does. http://forum.wehavelupus.com/showthr...5051-Its-M-day

    Here's another: http://forum.wehavelupus.com/showthr...t=methotrexate

    And another: http://forum.wehavelupus.com/showthr...t=methotrexate

    That should get you started. The 2nd two threads are more specific questions whereas the first was just where we would just keep in touch more or less and commiserate. LOL Are you going to be taking the oral or the injections? Most people report less side effects w/the injections. Personally I can't give myself shots, but that's just me!
    Lauren

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    Good Luck Ladies! I have my fingers crossed for both of you
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Lauren,
    I know just how you feel. I haven't taken it for two weeks because we were traveling. I didn't want to be immuno-suppressed while flying and hanging out with small children. I dread taking my shot on Sunday, but I know that it helps me. I haven't had those weird little sores on my skin while taking MTX. Now I've got three - blah!!
    Hugs,
    Marla

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    Marla,
    After only 2 weeks? Wow! I stopped taking it last year, 2009 in the fall. I had started vomitting blood and stopped everything until they finished all their testing. By the time they got done & found it was from the Prednisone, I was feeling better and decided to stay off of all of it! I've had mini flares and this summer wasn't fun, but this past month or so has just been plain bad! Been on Pred now for over 2 weeks and it's not cutting it. Doc said my levels are definitely back up, so here we go again! Even though I'm not looking forward to it, I'm praying that it will help. I really don't want to continue on this downward spiral that I seem to be on.

    Hope you had a good time w/the little ones! (((HUGS)))
    Lauren

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    Quote Originally Posted by red246 View Post
    Debbie,

    Here ya go! It has pages and pages of posts. Some of it has nothing to do w/Meth (haha) but alot of it does. http://forum.wehavelupus.com/showthr...5051-Its-M-day

    Here's another: http://forum.wehavelupus.com/showthr...t=methotrexate

    And another: http://forum.wehavelupus.com/showthr...t=methotrexate

    That should get you started. The 2nd two threads are more specific questions whereas the first was just where we would just keep in touch more or less and commiserate. LOL Are you going to be taking the oral or the injections? Most people report less side effects w/the injections. Personally I can't give myself shots, but that's just me!
    Thank you Lauren, I will read through it. I don't know, why I didn't look for it myself, oh yeah lupie brain. lol

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    hi debbie and lauren,

    i hope you are doing ok on the mtx. please consider the injection, the side effects are truly less disrupting.

    i will be happy to help if you have any questions.
    Phyllis

    share a smile today

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    Hey, what little sores are you talking about? I have tons of weird little sores and I wasn't sure if they were related to the Lupus.

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