Ohmeohmy! I think this post could have been written by any of us at different times throughout our illness. It is especially true when we try to look at ourselves through the eyes of the healthy, as you seem to be doing right now. Remember the spoons from the Spoon Theory. Some days I don't want to waste a spoon on getting dressed because I am running low from the time I get up. "Pull yourself up by the bootstraps" works if you are lazy but not when you are sick. I am not saying that you need to stay in the house all the time and avoid life but I am saying that during a flare sometimes it can't be helped.
The reason we type this and remind you that you are not wasting oxygen and reminding those that need it that they are ill is because we have all been there! Someone during that time was kind enough, honest enough and loving enough to remind us that we are sick and it isn't our fault so now we do it for others. There are days I still wake up feeling guilty because I wonder what I am teaching my daughter by sitting on the couch and having a tree up with only lights on it for christmas. Then she walks in with a big heart cut out of paper and places it on the tree and tells me that now it is the perfect tree. It now reminds us that all we need is love for christmas to be perfect. No, I am not wasting perfectly good oxygen.
Try hard to keep focused on your life from your eyes and not the eyes of well people. Listen to your body because over doing it will simply make it worse since our body does not give us the message when it has done enough until it is too late.
*hugs to you* We are here for you