Thank you for the warm helpful welcome, and nice to meet you! Please excuse my spelling
it is a new gift of lupus,sjogrens,ryanuads or the lesions in my brain, i get my letters all jumbled up and backwards sometime i catch it & sometimes not.
And yes this is the most incredible ,helpful, & careing forum i have ever found!!! And you
all have surley put some SUNSHINE back in my darkest day! A nd i am so blessed to have
found you guy's & i thank you all.
And yes my new reumy mentioned plaquneil i belive he wants to try it first just have to see what lumbar puncture and blood work revels if it's attacking my kidneys and heart , or lungs
Old reumy put me on plequenil before he didnt know what i had he only said mixed connected
tissue disease poss lupupus or sjogrens took it for 6 weeks and suddenly my skin felt like it
was on fire when i called reumy he said stop takeing it.
But i rather try it again than the more toxic ones my new reumy mentioned,
I have been on 5mg predisone for 5 months now & new reumy said it's not good for me to be
on it so long becuse of side affects to bones etc. But till last 3 week it has been only thing helping keep me going and helping with the severe knee and leg & back pain, juess i got
so upset over diagnosis of lupus & sjogerns gone to my brain this is the worsest flair ever
100 fever every evening,severe aching joint pain,fatigue balance issues ,stomach pain
lost down to 106.9 lbs and never been that low on my weight...
The i guess funny part have to laugh to keep from crying!! I cleaned my dryer lint thingy
out and was tryin to put clean washed clothes in dryer to dry them, And cleaned the lint
tray out put it back in shut the dryer door & turned it on and was dryin up a storm, TILL
I LOOKED OVER AT WASHER WITH THE LID OPEN AND CLEAN WET CLOTHES WAS STILL IN
THE WASHER ! LOL!!!!
This brain thing is the gift that keeps on giving!!! lol
And yes i do have a goody bag like you steroid mouth paste for mouth ulcers, steroid cream for weard skin sores and rashes, muscel relaxers for the new weard muscle spasams that totaly knock me down in a ball, pain med's that use to take the edge off i guess my disease is so bad now its going through it & the predisone, nerve meds for the raceing heart thing they say it tachartia now due to lupus or sjogrens & im on neurotin 600 mg at night for the nerve pain from
damaged nerves, and norvasc for ryanuads where my fingers were spliting open & getting infected & wouldent ger well ,it has worked very well thay havent got infected since i
started takeing it thank goodness!
I tryin to accept the new me & the new diagnosis whitch in the back of my head i knew i probly had
The hardes thing to accept is the brain thing i get so confused with money and writeing checks now ive had to turn it over to hubby, ill write my numbers backwards and it looks right but will be wrong, at times i go to pay for gro or med,s at store and suddenly i get confused on witch card to swipe and the more i stress the more confised i get havent drove in 2 years becuse of bad virtigo and drunk head that suddenly comes with no warning, was driveing home last time it happened and was so scary trying to stay on my side & not ditch with head spining.
New studdering, loose my words when talking, i have to use a cane now at all times but
at least i can feel my legs a bit better and can still walk on my own! thats a blessing
i know it can be worse and there are people worser off than than i, so i try not to complain
much, This disease can surley stop you in your tracks & knock you down but im learning
new ways to do things & tryin to cope with what i have & no one knows what your going
unless they have been there them selves like you guys.
So thankful i found you guy's!!!! You have been so much help!
And yes i love growing my flowers and rooting them it's a stress reliver for me when im able to get out and do it , just do it now with a hat on & when the sun is behind the trees.
I hope you have a great day Mountaindreamer!!! Diane
~Where Hope Grow's, Miracle's Blossom~
(CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.