Welcome to WHL. Hopfully as you learn from the many informative threads you will also help some of us newly diagnosed on how to cope. I suppose it isn't that bad for my co-workers and family to understand how I feel because I limp alot, and walk slowly when in pain. So it is obvious that I am in pain and have Lupus. My husband asks me daily how I am feeling, but it is the same story every morning Hubby "How are you feeling" - Me "Sore" - Hubby "Why" - Me "Lupus" - Hubby "OK" ....... Now that conversation gets a bit boring every day. We have come to an understanding that if there are any new aches or pains I will let him know and not mention the everyday pain, unless it is a particularly a bad day. My kids (18 - 21 - 23) though they are concerned about my health, and will help out if I ask them (reluctantly at times) they really do not know the extent of everyday difficulties I suffer.
I do not generally discuss being unwell with my extended family because I don't want their sympathy and I don't want them to go around discussing poor Linda and getting all upset and all that rubbish. That is not really helpful, especially if they think that I am a burden to my family and that someone is missing out because I can't do certain things. My Mother in law especially will just cry all the time and what is the point of that. I am the one sick, not her. I suppose no one really understands unless they suffer the illness themselves. When I am having a hard time I just think of so many others on this forum who are having a harder time than me. So bascially if people ask me how I am, I just say fine. They can generally get the idea how I am feeling by just looking at me, I try to hide the pain and the fatigue but apparently everyone can see it on my face or how I walk or move.
Last edited by Linda From Australia; 12-14-2010 at 03:34 PM.
Diagnosed with Lupus - 22 June, 2010