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Thread: Ok so anybody read my post and have a thought?

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    Default Ok so anybody read my post and have a thought?

    ???
    Dx this year SLE but because of past symptoms and testing I think I've had it 15 years!Dx 1990 Fibromyalgia, depression, OA, migraines, plantar fasciitis, tarsal tunnel synd. both feet.Heart surg '97 for bicuspid aortic valve w/regurg. hi cholestrol.

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    Hugs, dear. I'm not sure which post you're referring to, but Ihave commented on a couple.

    I know it can be frustrating, but this board typically takes a bit of time to answer posts. We're on at different times, we're around the world in many cases. Sometimes, sadly, it can be days before there is a response. I wish it were different!

    But know that this board is filled with people who do care and who do participate when they're able.

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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Hi Colleens;
    Sorry you did not get a response to your post as soon as you would have liked. Please also try to understand that almost all of us are suffering from Lupus or some other connective tissue/soft tissue/auto-immune disease and just cannot get to the board every day. So, sometimes, it will take several days to get a response because we also have down days, doctor's appointments or just days when we are extremely fatigued.
    Please know that you are not (and will never be) ignored and we will always respond and try to help in any way that we can!!

    I wish you the best, please be patient with us :lol:
    Saysusie

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    ops: Sorry...I was in middle of a flare...thought it was Fibro flare but was Lupus. How to cope with all the itching...i have SLE and discoid.???
    If anyone should know about trying to be patient it is me, but alas I was wrong to expect instants posts to my message. Sorry again.
    Dx this year SLE but because of past symptoms and testing I think I've had it 15 years!Dx 1990 Fibromyalgia, depression, OA, migraines, plantar fasciitis, tarsal tunnel synd. both feet.Heart surg '97 for bicuspid aortic valve w/regurg. hi cholestrol.

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    That's ok. I think we all get frustrated when we aren't feeling good and no one can tell us how to fix it. I hope you are feeling better.

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