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Thread: Told someone you have Lupus and they just don't get it?

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    Default Told someone you have Lupus and they just don't get it?

    I told one of my friends today that I have Lupus. I knew she didnt know what it was...nor did I expect her to. But she got into some big religious discussion with me instead of asking me about Lupus. Like if I had more faith that I would be healed from it. Hey, I'm a Christian too, but don't thump me on the head when I come to tell you this...this is hard for me...don't ...damn i cant complete my thoughts tonight. I'll try again another time.
    Dx this year SLE but because of past symptoms and testing I think I've had it 15 years!Dx 1990 Fibromyalgia, depression, OA, migraines, plantar fasciitis, tarsal tunnel synd. both feet.Heart surg '97 for bicuspid aortic valve w/regurg. hi cholestrol.

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    Welcome Colleen,

    What a sad thing to happen! You could try visiting www.butyoudontlooksick.com and look at the spoon theory - that often helps people understand what we "lupies" feel.

    A supportive friend is worth her weight in gold. I hope, for you, that this friend comes around and begins to understand that this isn't "punishment" for anything. In fact, in many ways, I've found this condition to be a gift - I take life a bit slower now, I savor it and cherish the moment. In time, maybe you'll come to that point, and your friend will understand.

    Many hugs.

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    Default Re: Told someone you have Lupus and they just don't get it?

    Quote Originally Posted by Colleens
    Like if I had more faith that I would be healed from it.
    I got that when I was a kid and diagnosed with type 1 diabetes. I had the added burden of being a "heathen Jew".

    I started jokingly referring to it as "G-d's Chosen Illness".

    I often have to use a forearm crutch when I walk because of the neuropathy
    in my legs and get "witnessed" in parking lots, etc.

    Oddly enough, none of it has ever made me want to embrace Christianity. If I would just give up my sinnin' ways........I'd still be sick with diabetes and lupus and not having nearly as much fun as I'm able to have now.

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    :lol: Ariel, you're a stitch! Yes, the heck with it, the sinnin' ways are a lot more fun!

    If you're Jewish, you'll remember the patience of Job - heck, God isn't always so kind to his followers either!

    Hugs dear.....and one question. What is your picture of? I can't quite make it out, but I like it all the same!

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    Quote Originally Posted by hatlady
    What is your picture of? I can't quite make it out, but I like it all the same!
    It's a teeny little faerie resting on a piece of barbed wire.

    Glad I could give you a chuckle! I'm a firm believer in laughter as good medicine!

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    AH! Now I see her! How sweet!

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    I'm so sorry about the reaction of your friend - some people just don't get it. So, find some friends that do, and you know this is the place to come to really find people that get it!
    Missy

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