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Thread: My story...so far

  1. #11
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    Thanks Marla
    Had'nt read that thread was just what I needed this morning. Have been begining to think Alkzimers was a possibility. Great to find I'm not the only one with all these strange language/word replacement problems.
    Many thanks and Hugs

  2. #12
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    I am relieved to hear that my brain fog isn't uncommon. Sometimes I wonder if I should withdraw from my doctorate, as my brain doesn't function as easily as it did when I started the degree.

    Today my wrists and fingers hurt. I think that is probably good news, as there are a lot more joints that could be hurting!

    Another question for the 'experts': The last time I had my ENA panel done was a year ago when my ANA was 1:320. At the time, my specific antibody tests were negative. Now that my ANA has gone up, is there a chance that I may actually be positive on some of the ENA panel (anti-Sm, anti-Ro, etc..)

    Thanks to all who have replied. I feel like this page is a lifeline for me right now.

  3. #13
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    Hi Harper,

    As for the bloodwork it is hard to say. One of the problems with this disease is that our blood work fluctuates so much. It is worth a shot I guess but just remember that you can't live and die by the blood work because it will fail you in a heartbead (believe me because mine has over and over!)
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  4. #14
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    hi harper,

    welcome to the group. you have found a place where you will find answers to your questions, and shoulders to cry on if needed.

    i also have fibromyalgia, and my wrists and hands are the center of a lot of pain and discomfort. they will turn red and white, burn up from the inside, and hurt no matter what position i try to hold them. the pain is not in the joints, it is in the small connective tissue. i have not found a solution, i just try to keep them comfortable.

    as others have said, the lab results vary so between people, plus, they will vary according to inflammation. AI diseases are very difficult to narrow down to the specific disease/diseases. in addition, there is a lot of secondary AI illnesses that seem to attach themselves to each other. Fibromyalgia is a very common side disease with lupus.

    I can tell by the preciness of your list of symptoms that you keep good health records. Diagnosis is made easier if the patient has a thorough list of symptoms, because diagnosis takes a combination of lab results along with personal health history. I recommend that you read some of the stickies and other threads here at whl, learn about the various illnesses that can occur with lupus, and take a copy of your list to your drs. appointment.

    also, you say you are seeing an internal medicine specialist....have you seen a rheumatologist? that is the dr. that treats auto immune illnesses. There are some really bad rheumies out there, but there are also some really good ones....keep looking until you find one that fits your needs, and don't apologize for leaving one of the sorry ones.

    hope to visit with you again soon.
    Phyllis

    share a smile today

  5. #15
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    Hi Harper,

    I saw that you stopped by chat but no one was around. You said you went to the doctor today and you are a bit freaked out. What happened that has you so worried? Sorry you stopped in at a time no one was around but we will be in and out for the rest of the evening. We are here to help
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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