Hey there. Just wanted you to know Im here if you need to talk. I too have mitral valve prolapse. My mom was told at birth I had a heart murmur and then at 2 yrs old that it went away. At 15 after I had my first seizure I was told that I had it again. I dont know if it never went away or if it came back?? I now get symptoms that are bothersome from it though including palpitations, chest pain/pressure/discomfort, shortness of breath, irregular beats, elevated heartrates etc. I have had a few echos done which revealed the prolapse and leaky valve but not any endocarditis or pericarditis etc. So, I can relate in that way at least and hope you get things taken care of soon!
I also can relate to having a new someone in your life and how wonderful they are and not wanting to burden them. My current boyfriend(ive known him 7 yrs but weve been together just a few months), he knows of my lupus but not specifically much about it. He is an EMT/Firefighter/Marine and in the National Guard. He works as a correctional officer at a local prison here as well so he knows how to handle tough situations and has a medical background, but this is something that will NEVER go away..at least not completely. It stays a part of us. I have told him of my disease and he has said he will never leave me regardless of what I go through, that hell always be there to support me and love/care for me and our children. This warms my heart to hear this as we have talked of marriage etc but it also scares me that the more time we share together in life the more chances of this evolving into something I dont want...and I dont want him or our children affected by it :/. I really dont know what else to say at this point for either one of us because it is very hard to deal with at times. Probably where some of my anxiety/insomnia are coming from at present. I was in school last january and half way through a phlebotomy course to be certified to work and had to quit due to missing too many days. I missed the 2 aloud and then another due to not being able to drive because I had had a seizure after 7 yrs of being seizure and med free. What a disappointment. I had just gotten my license the month before in december for the first time in my life because of the seizure ordeal. Now were looking to see if the epilepsy is due to the lupus itself. As I was going to school it made my lupus worse due to the fluorescent lighting and stress. I am just hoping I can finish the class this time as I start again this january. I will keep you in my prayers and thoughts and hope that things get better for you. I hope that my story ive shared has at least made you aware you are not alone and that many people are probably going through what you are right now. I also try to tell myself..there is always someone worse off and its ok to cry Im here if you need me. *hugs* -Lupie Britt
*LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
Methotrexate- 2.5mg 4 pills 1x/week
Folic Acid- 1mg 1x/day
Protonix 40mg 1x/day
Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
Vit. D 800IU's 1x/day
Lyrica- 75mg 1x/day
Flonase 50mcg 2 sprays each 1x/day
Wanna know my story, just ask!