I've been living with the knowledge of this condition since 1998.
It's very hard to cope with. You need to live quietly and calmly. Learn what your triggers are. No there are times when there is no relief from meds. A dark room, soft music and calming thoughts.
My neuro surgeon said that any migraine above a seven you need to go to the ER.
I hope this helps to know you are not alone
hugs and calming thoughts,