Hi Sue and welcome to WHL. First thing to do is stop and take a deep breath. I know that when you are ill and have no idea what is going on the stress is crazy. Have you tried going to a rheumatologist? If not that would be my first stop. The rheumy will do more blood work (which may or may not get you some answers) but it is the best place to start.
Until you get this all figured out just know that we will be here for you as long as you want us. We can't stop the pain but it is always nice to have a place where people understand what you are going through