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Thread: Up date on phone calls made to Gyno & pyschiatrist

  1. #11
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    Quote Originally Posted by serand4 View Post
    Talk about timing! My mom called me crying last night because there's so much conflicting information that I'm receiving from my doctors. I had one doctor practically tell me I'm dying and then I find out he's called my rheum doc and suddenly is acting like I had a mild cold and could come in later that month. Seriously, he had literally left our appointment to call the doctor after my lung test results (she wasn't there) and later I'm suddenly no big deal. Two days later I'm at my Rheum doc who sits me down and tells me I probably don't have Lupus. This is the woman that six months earlier called me on my cell to tell me she had serious news. She believed I had Lupus and wanted me to start on Methotrexate immediately. I was also put on 20mg of Prednisone. In between time, I had blood clots, and other common illnesses with Lupus, all in a very short period of time and praise the Lord, my pcp turned out to be a total prince (I'd only seen him for colds over the years) who helped me much more than my Rheum.

    It's Thanksgiving week so I'm holding back but once next week comes, I WANT SOME ANSWERS! What on earth did the rheum say to take me from shrinking lung disease to "oh, no big deal". And how can things change so suddenly when I had literally just had the test results put in my doctor's hands?

    You gave me courage Terri. I truly believe in God's good timing - I believe this an excellent example! Thank you!
    Hi Serand,
    This is exactley what i'm on about you've got one doctor saying one thing and another saying opposite. I've had all the clotting and DVT bad and refering your lungs nobody can be fobbed off refering that score, it's like mine and i've mentioned it a few times on several threads my right lung as a swelling but my doctor was honest with me and told me the muscles are swelling around my lungs and the pain is terrible, well that can cause pluresey or fluid filling the lungs, well i've had pluresey twice in the past and my doc did say the lupus seems to be running abit riot, that's a joke at the moment, it's doubling me up.

    Well i'm realy pleased your pcp turned out to be realy helpful and come next week fire the question's mate and don't get being fobbed off stand your ground because that's what i intend to do in January as there's to much of it going on GOOD ON YA MATE GO FOR IT.

    Don't forget to add a thread letting we all know how it went and i'm wishing you all the very best. Terri xxx

  2. #12
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    Terrri you mentioned that you only get to see your psychiatrist every six months. I am sure if you have concerns you can phone him in between time and make an appointment to see him, especially if your mental health is declining because of your declining physical health. If he isnt going to adjust any medication, at least you can let him know how you feel and he can document how being ill is making you feel mentally. Seeing a psychiatrist once every six months is only to review you if you are well. IF you are sick, you need to be reviewed more frequently.

    Please do not get me wrong, I am saying that you are mentally unwell and you need to see your psychiatrist, what I am saying is that you will need to see your psychiatrist more often before you start to feel unwell mentally. Gee this sounds like a negative post, but I hope you understand what I am saying. Your mental health is just as important than your physcial health.
    Diagnosed with Lupus - 22 June, 2010

  3. #13
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    Hi Linda,
    I hope your keeping ok in yourself and nice to hear from you.
    I can't see my psychiatrist any other time because they've cut down on him seeing his patient's and they now ring you to see if your turning up, they're really changing things over here concerning doctor's but i can see another doctor if i want in between but i won't do that because it's like explaining your life history before they even know what's going on but at least if i leave a message for my doctor to get intouch he always rings me plus it's a walk in clinic where there's a team of case workers who know me such alot and i have back up with them but my medication can't be touched only by Avril for the neurology.
    It's not a negative post because i know where your coming from, they can't help my depression as the tablet's don't work but in the past if i've got to bad they start a mental health team up on me doing a 24hr watch to check up on me but because i'm married now if i'm really bad my hubby gets intouch straight away.

    Luv Terri xxx

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