I know how frustrating it can be to know something is wrong, and have a pretty good idea what it is, but have to wait forever for doctors to prove it for themselves. In the meantime, you are getting sicker and sicker and losing more and more blood. It's too bad that we cannot take a hammer and beat them in the head with it so that it imprints upon them these words, "Your patient knows what in the H*@@ she is talking about, start treatment immediately to relieve the symptoms!" But, alas, we can't.
I am glad that they finally got an answer and now you can be aggressive when demanding that they do something right now. Additionally, tell them that the next time, you refuse to allow them to let you bleed to the point of unconsciousness before they do anything! I wish you the very best and let us know how your appointment goes.
Peace and Blessings
Look For The Good and Praise It!