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Thread: Looks like a flare is coming

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    Default Looks like a flare is coming

    Well, I have a feeling I am about to have a bad spell. I woke this morning with 1 blister in my mouth and tonight I have 4 on my tongue and 1 in my nose. This is how they always start for me. Funny thing is my daughter noticed something last night because she said to me "Mom, are you about to have a spell?". LOL Isn't it sad that even those close to us begin to learn the patterns of our illness.

    I have to go grocery shopping in the morning and then I am going to come home and hit the couch. Hopefully if I go down now and rest I can keep it from getting too bad. Cross your fingers for me, please!
    Mari

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    tgal-
    Good luck! I'm five years in and still can not recognize when I might flare or why, so at least you are one up on that. Can you call your doc and get started on a dose of the dreaded prednisone to keep it at bay, or does he make you wait until you are full on?
    Truly-Heather

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    Oh Xani's mom I can't always tell but I do know that each time before when I have had really, really bad ones they have included the blisters. It is the only time I get them so I would be surprised if they were not a sign of things to come. I am crossing my fingers though.

    As for the pred. I take a dose daily and have since Feb. I have been out of a job since April and insurance since Oct. There are no trips to the doctor in the budget at this time. It will pass. It always does. Thanks for being so kind though
    Last edited by tgal; 11-10-2010 at 07:00 AM.
    Mari

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    ~Winston Churchill~







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    Hi tgal,

    Like you, I have certain signs and symptoms, that alert me that a flare is coming.
    It may be better to know, that it is coming. Then you can rest asap and maybe it won't get as bad.
    When I feel mine coming on, I get a steriod shot ( if I can get into the rheumies office), sometimes it helps, sometimes it does nothing.
    Hope your flare is not so bad and you get over it soon.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    Sorry you've got the nasty blisters. When I've gotten them, coincidentally, my WBC levels were also low so maybe upping your folic acid will help your blisters heal a bit faster.

    Hope you feel better soon.

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    Hi Tgal;
    How funny that our warning systems are essentially the same. I woke up this morning with blisters in my nose, a raging headache, uncontrollable chills and fatigue...sure signs that something bad is coming
    I hope that your is not a bad flare-up and that it goes away quickly.

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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    I think I read that you take 5 mg of the dreaded prednisone a day. That is not going to help you much, especially if you take it regularly. I am so sorry about your insurance. Could a lawyer or somebody try to help you get it back? Tgal, I can't imagine going without insurance it hurts my heart that you are in that situation. Is there some kind of aid that could help you? I hope you feel better soon, stay off your feet.
    Hugs-Heather

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    Oh I know 5mg isn't going to help. It never has. As I said, I take 9 meds and all they do is keep me treading water not feeling good.

    I do have an update to the Disability that we have been working on since June. Although I had a neuropsych test already (6 hours worth) the SS Administration feels like I didn't have a "complete" neuropsych/mental status evaluation. They have set an appointment up for me on the 22nd at 11AM to have this test and find out if they are going to give me my disability and medicaid so I can return to my doctors. Keep your fingers crossed!
    Mari

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    ~Winston Churchill~







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    Hey Tgal,
    I hope that you are feeling better tonight! So, do the disability powers-that-be want to prove that you are crazy, or what? Would being crazy be the only way that they would give you disability? Seems like a pretty odd requirement to me!
    Hugs,
    Marla

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    Quote Originally Posted by tgal View Post
    Oh I know 5mg isn't going to help. It never has. As I said, I take 9 meds and all they do is keep me treading water not feeling good.

    I do have an update to the Disability that we have been working on since June. Although I had a neuropsych test already (6 hours worth) the SS Administration feels like I didn't have a "complete" neuropsych/mental status evaluation. They have set an appointment up for me on the 22nd at 11AM to have this test and find out if they are going to give me my disability and medicaid so I can return to my doctors. Keep your fingers crossed!
    Fingers are crossed.
    If that is what it takes, if they want crazy, GIVE them crazy. ( I know, bad joke).
    It really makes me mad, that we all get the crazy stamp on our forehead.
    They don't get it, WE ARE LUPUS PATIENTS, NOT MENTAL PATIENTS. Those are two different diseases.
    Well my friend, I wish you luck and hope that your flare is on it's way out.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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