Results 1 to 10 of 18

Thread: Crohn's and Lupus

Hybrid View

  1. #1
    Join Date
    Nov 2010
    Posts
    7
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Crohn's and Lupus

    Hi all,
    New to the site, new to lupus. Have had Crohn's disease for 12 years. I'm 27 and just diagnosed with lupus via positive blood test results. I have had arthritis with bad swelling in joints, loss of range of motion, pain, so swollen it feels like my skin will split, red, bruised looking. I just ache all over. It is hard to walk and move around. I also have a rash-little red, scaly bumps all over my neck, chest, torso, now on my face. My eyes itch so bad I want to claw them out. They are red and runny, feels like gritty stuff in my eyes, sometimes blurry vision b/c of it. I'm completely exhausted, which I'm used to from Crohn's. I have an aunt with lupus and my docs hope this was caused from a medication called Humira I took for Crohn's, but stopped b/c of the positive lupus tests and symptoms. Still waiting to get in to see a rheumy. I am not sure this is medication induced because I have had a lot of these symptoms for years, though I know autoimmune diseases can present with similar symptoms. Right now I'm managing with pain pills when I can't take the pain anymore or can't walk b/c of it. Anyone else have medication-induced lupus? Does it go away eventually? Quite frankly, I'm not sure I can deal with this AND crohn's.

  2. #2
    Join Date
    Mar 2009
    Location
    Dallas, Tx
    Posts
    1,862
    Thanks
    145
    Thanked 413 Times in 339 Posts

    Default

    Hi Liz

    Welcome to WHL.
    Sorry to hear, that you have been dealing with Crohn's and now lupus.
    My friends son has Crohn's and that alone is enough to deal with.
    Did you check, if Humira is one of the meds, that causes drug induced lupus?
    I don't know much about DIL, but I think, I have read somewhere, if the drug that caused the DIL, is taken away, the symptoms will go away. I could be wrong though, but someone will be here soon and have a better answer for you.
    Again welcome.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

  3. #3
    Join Date
    Apr 2009
    Location
    in a house
    Posts
    302
    Blog Entries
    2
    Thanks
    0
    Thanked 6 Times in 6 Posts

    Default

    I dont have any answers for you, but there are lots of people on this site that will have answers for you. I can tell you to keep your chin up. It does get better. Have faith that they will find something to help you manage. Meanwhile, hang here with us and let us help you keep your spirits up! Welcome and I will include you in my prayers. God bless you!
    A good friend will help you move, a GREAT friend will help you move a body . . . Let me know if I need to bring a shovel!!!

  4. #4
    Join Date
    Oct 2010
    Location
    Walshville, IL
    Posts
    49
    Blog Entries
    3
    Thanks
    2
    Thanked 2 Times in 2 Posts

    Default

    Medication induced lupus is supposed to go away after the medication is completely out of your system. Unfortunately I know that a lot of auto-immune dissorders come in groups. I have ulcerative colotis, but I don't know if crohn's is auto-immune. I wish you all the luck in the world and hope that your symptoms dissapear with the medication. I hope you found a new medication that works as well for your crohn's, I know that can be a problem when you find a med that works well for one thing and you have to stop it. I think there are a lot of people here who have great advice, and I hope you enjoy the site.
    Truly-Heather

  5. #5
    Join Date
    Nov 2010
    Posts
    7
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Thanks all. I'm not really sure Humira was still working for me anyway-my Crohn's has been flaring since at least June, probably before, so it was prob. time to go another route. Yes, Crohn's is auto-immune. It's the "sister disease" of UC, but it affects your entire digestive tract-from your mouth to anus where UC affects only the large intestine. I had surgery to remove my colon for UC, and hopefully "cure" it, then found out after that it was actually Crohn's. I honestly won't be super surprised if I do have lupus on top of this, but I hope not!
    I ended up going to Urgent Care b/c I couldn't get into a rheumy till Tue. My eyes are driving me crazy. She said it looked like pink eye, but I know it's not. I've never had pink eye in my life, I am not around kids, I am a fiendish hand-washer and I am not an eye-rubber. Plus, the drops she gave aren't helping, but she did give me a steroid shot and some prednisone which is helping arthritis tremendously. Rash is still hanging on. Hopefully the rheumy will have some answers and solutions.

    Thanks all!

  6. #6
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,521
    Thanks
    1,547
    Thanked 1,742 Times in 1,211 Posts

    Default

    Hi Liz,

    Keep us posted on what you find out. As was mentioned before, these diseases often come in groups so once you have one you need to make sure the doctors are paying attention for any others.
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  7. #7
    Join Date
    Jun 2009
    Location
    Long Island, NY
    Posts
    1,855
    Blog Entries
    3
    Thanks
    172
    Thanked 154 Times in 125 Posts

    Default

    Hi Liz,

    Welcome. Do you have allergies? I get allergic conjunctivitis - pink eye caused by allergies and not contagious. I take an OTC eye drop called Zatidor 1x/day and also use artificial tears before putting those drops in and before bed and it clears my pink, so itchy I wanna claw them out and rub them on sandpaper, allergy eyes.

    Sandy
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •