Hi Xani's Mom;
I am Saysusie, the other moderator for this site (which was formed in memory of my daughter, Lauri). I am a bit late in welcoming you, but I see that you have been warmly welcomed by several of our members and you have been given some excellent advice.
You will find that this place is filled with the most caring, understanding, and informative people on the web and you are never alone when you are here with us.
This disease can be a lonely one and can make you feel alienated. It is hard to make our friends and family understand how this disease affects us. Many times, we can feel as if we are completely alone and totally misunderstood. However, as Marla, Rob, Tgal, and Terri have shown and said, it is very possible to have a fulfilling life with this disease and there is always hope. We are here, in part, to continue to give you hope. We do that by giving you useful, truthful, and helpful information and advice; by letting you know that we understand and that we truly care, and by never judging you or devaluing anything that you say.
I do hope that you make friends here and that you know that you are valuable to us! Again....welcome
Peace and Blessings
Look For The Good and Praise It!