Results 1 to 5 of 5

Thread: Not diagnosed.. Need help

  1. #1
    Join Date
    Oct 2010
    Posts
    2
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Not diagnosed.. Need help

    Hi

    Been suffering for many years and have tons of symptoms. Done marry go round with rhumy and neuro.

    If you guys can help me understand my blood test result that would be help full

    In dec 2003
    Ana 1:80 nucleolar

    In January 2004 by rhumy
    Ana negative
    DNA (ds) antibody crithidia IFA w/ reflex to tired
    DNA AB (ds). Negative

    Creatine kinase. 29

    Histone Ab negative

    Sm and sm/rnp antibodies. Negative
    Sm antibodies

    Sm and sm/rnp antibodies. Negative

    Sjogrens ssa and ssb negative

    Lyme igg and igm western blot
    B. Burgdorferi ab Negative

    In march 2005
    Ana 1:40 speckled
    Sed rate. 39
    Rhumatoid factor. Negative


    September 2005 rhumy office
    Same test repeated that included histone, DNA ds,
    Ana, rheumatoid, all negative
    Sed rate 58 high
    C reactive 91 high
    C3c 179 normal
    C4c 58 high

    Now the two times that Ana was borderline that was done at regular doc office then detailed ones at rhumy.
    After 2005 every single Ana has been negative and been tested a bunch.
    Crp has been normal buy se rate continues to be high. Recently it was 39. It's not that high.
    Rhumatologist says test don't prove anything. And her Ana test is very sensitive and as recent ssa and ssb were again negative.

    I have had tons of test done and I am. Vitamin d deficient
    Positive test are
    Vitin d deficiancy
    Trace to moderate blood in urine
    High sed rate

    My thyroid, ace, diabetes, MRI
    , and emg, ncv all normal.

    I have muscle cramps and twitching from head to toe
    Neuropathy symptoms of stabbing. Burning ...
    Tierd, sinus allergies,
    Tremors, vibrations, a lot of neurological stuff
    Stiffness, there is more stuf
    Some rash on back.

    Do the test indicate anything.
    I will write more about my symptoms soon.
    All I know my stuff got wires after flu shot.
    As of now I only take muscle relaxers.

    I have a sister with multiple sclerosis.

    The extensive blood work Is that good or can they do more.
    Thanku
    Roses

  2. #2
    Join Date
    Oct 2010
    Posts
    2
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    The rhumatologist said to me sed rate docent even matter cause it could be from allergies or the fact I have blood in my urine so maybe inflammation in bladder wall. She does want me to go to kidney specialist to look into that along with vitamin

  3. #3
    Join Date
    Mar 2010
    Location
    foothills of carolina
    Posts
    154
    Thanks
    44
    Thanked 9 Times in 9 Posts

    Default

    Hi Roses,
    I just want to say welcome. Some of the others should be along before long and they can help you with the bloodwork questions. I never have fully understood how they read all those tests. I have had a bunch of questions and Saysusie, Marla and Rob are real good to answer them. They are the brains.... I just drop in on people to welcome them and say hello. Welcome to the site. Billie

  4. #4
    Join Date
    Jul 2010
    Location
    Florida
    Posts
    48
    Blog Entries
    4
    Thanks
    3
    Thanked 9 Times in 9 Posts

    Default

    hi roses
    Slim here is some info. hope this helps. Sed rate measures how quickly your red blood cells settle in a test tube in 1hour. The more cells that settle to the bottom the higher the rate. This is present in the body during inflammation and is seen in autoimmune disorders or cancer. C3 and C4 measures certain protein activity it is used to monitor how a pt.is responding to treatment Patients with active lupus have a lower than normal levels of c4 . Patients with rheumatoid arthritis have normal or higher than normal in their blood but much lower in their joint fluid. Hope this was able to help. feel better. slim

  5. #5
    Join Date
    Sep 2010
    Posts
    5
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Quote Originally Posted by Roses View Post
    The rhumatologist said to me sed rate docent even matter cause it could be from allergies or the fact I have blood in my urine so maybe inflammation in bladder wall. She does want me to go to kidney specialist to look into that along with vitamin
    My doctors said that the elevated sed rate is indicative of inflammation or infection. My response was something like - isn't that what the joint pain is? Inflammation in the joints?

    I don't think sed rate alone proves much, but join it with the ANA and other findings and it could be something.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •