I too am not diagnosed yet either.Its not that i want it to be LUPUS but i know my body and know for sure something aint right! Joint pain,swelling,hair loss,huge migraines,jaw pain,rashes,nose sores n ulcers in the mouth,depression severe anxiety INSOMNIA omg is that an awful thing to have on its own!! Many more symptoms.
In the beginning was told it was a nervous breakdown and the doctor i think just wanted me to go away. I did. As the years went by i got sicker and since then have been fighting the doctors all the way.
Always remember doctors are human and are not god.They make mistakes,some have an attitude and some actuallt listen n help.Dont be intimidated by them.Change doctors as many times as you feel you need to if you feel they are not taking you serious.YOU know your body!!
Since the first diagnosis i now know i have Asthma,Raynaurds,srjogrens,depression n anxiety,Insomnia,Acid reflux,Ibs,Migraine,fibromyalgia, they think i have ME/CFS and this is what i dont believe as i have waaaaaay to many other symptoms.My rheumi said it was Lupus to change his mind.So ive just been tested again.Im not holding my breath.I just know through knowledge and my symptoms its not ME/cfs alone.
So keep posting.Many of us hear ya and understand you.Some members here waitied years for a diagnosis,no matter what it was and yet some were diagnosed quick.Hope my ramble haas helped a little.
lots of love
P.s Sad this wasnt seen before but it happens,noones fault.ROB you are the best!!!! x
I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx